学龄期哮喘患儿父母照顾负担对父母生存质量的影响:应对方式的中介作用  

Influence of parental care burden on quality of life of school-age children with asthma:mediating role of coping style

作　　者：杨芳[1] 周静茹 宋晓艳 胡婷婷 杜春萍[2] 崔映娟[3] 杨岚[4] 郑思琳 Fang YANG;Jing-Ru ZHOU;Xiao-Yan SONG;Ting-Ting HU;Chun-Ping DU;Ying-Juan CUI;Lan YANG;Si-Lin ZHENG(Nursing Department,Deyang People's Hospital,Deyang 618000,Sichuan Province,China;Rehabilitation Medical Center of West China Hospital of Sichuan University,Chengdu 610000,China;Major Surgery Department of Affiliated Hospital of North Sichuan Medical College,Nanchong 637000,Sichuan Province,China;Divisionof Medical Affairs,Zhongnan Hospital of Wuhan University,Wuhan 430000,China;Teaching and Research Office,The Affiliated Hospital of Southwest Medical University,Luzhou 646000,Sichuan Province,China)

机构地区：[1]德阳市人民医院护理部,四川德阳618000 [2]四川大学华西医院康复医学中心,成都610000 [3]川北医学院附属医院大外科,四川南充637000 [4]武汉大学中南医院医务处,武汉430000 [5]西南医科大学附属医院教研室,四川泸州646000

出　　处：《医学新知》2023年第6期429-437,共9页New Medicine

基　　金：四川省卫生健康委员会医学科技项目(21PJ170)。

摘　　要：目的探讨应对方式在学龄期哮喘患儿父母照顾负担与生存质量间的中介作用。方法采取便利抽样法选取2021年1月—7月在四川省三所三甲医院儿科门诊就诊的学龄期哮喘患儿父母作为研究对象,运用一般资料问卷、父母应对方式量表、照顾者负担问卷、生存质量测定量表简表进行调查。采用结构方程模型检验应对方式、照顾者负担和生存质量间的中介关系。结果共回收问卷380份,其中有效问卷366份,问卷有效率为96.3%。父母平均年龄为(34.37±5.08)岁,患儿平均年龄为(7.71±1.70)岁。学龄期哮喘患儿父母的照顾者负担量表、应对方式量表、生存质量测定量表平均总得分分别为(29.56±17.42)分、(163.58±26.47)分、(88.81±13.29)分;学龄期哮喘患儿父母照顾负担与应对方式、生存质量均存在两两相关性(P<0.05)。应对方式(寻求社会支持,维护自尊和心理稳定)在照顾者负担和生存质量间起部分中介作用,中介效应值占比15.1%。结论学龄期哮喘患儿父母生存质量并不乐观,照顾者负担总体处于低负担,应对方式整体处于中等水平,应对方式(寻求社会支持,维护自尊和心理稳定)在学龄期哮喘患儿父母照顾者负担与生存质量间起部分中介作用,建议可以依据这一路径干预患儿父母的应对方式和照顾者负担,从而提升其生存质量。Objective To explore the mediating role of coping methods between the parental care burden and quality of survival in school-aged asthma children.Methods Using the method of convenient sampling,the parents of school-age asthmatic children in pediatric clinics of three first-class hospitals in Sichuan Province from January 2021 to July 2021 were selected as the research objects.The general information questionnaire,the parents'coping style scale,the caregiver's burden questionnaire,and the short form of the quality of life measurement scale were used to investigate.Structural equation modeling was used to examine the mediating relationship among coping style,caregiver burden,and quality of life.Results A total of 380 questionnaires were collected in this study,of which 366 were valid questionnaires,with an effective rate of 96.3%.The average age of parents was(34.37±5.08)years old,and the average age of children was(7.71±1.70)years old.The average total scores of the caregiver burden scale,coping style scale,and quality of life measurement scale of parents of schoolage asthmatic children were(29.56±17.42)points,(163.58±26.47)points,and(88.81±13.29)points;the caregiver burden of parents of school-age asthmatic children There is a pairwise correlation with coping style and quality of life(P<0.05).Coping style(seeking social support,maintaining self-esteem and psychological stability)plays a partial mediating role in the relationship between caregiver burden and quality of life,with a mediating effect value of 15.1%.Conclusion School-age asthma children parents quality of survival is not optimistic,caregivers burden overall low burden,overall response in the medium level,coping(seek social support,maintain self-esteem and psychological stability)in school-age asthma parents intermediary burden and quality of survival,suggested that based on this path intervention children parents coping and caregivers burden,to improve the quality of survival.

关 键 词：学龄期 哮喘患儿父母 生存质量 照顾者负担 应对方式 

分 类 号：R473.72[医药卫生—护理学]