三级诊疗体系下儿童血友病双向转诊路径实践探索  

Practice Exploration of the Two-way Referral under the Three-tiered System of Diagnosis and Treatment for Children with Hemophilia

作　　者：那春霞 刘国青[1] 刘之蕙[1] 吴润晖[1] Na Chunxia;Liu Guoqing;Liu Zhihui(National Center for Children’s Health/Beijing Children’s Hospital,Capital Medical University,Beijing,100045,China;不详)

机构地区：[1]国家儿童医学中心·首都医科大学附属北京儿童医院,北京100045

出　　处：《中国医院管理》2024年第1期94-96,共3页Chinese Hospital Management

摘　　要：首都医科大学附属北京儿童医院搭建血友病三级诊疗体系,摸索本地、异地两种转诊模式,通过建立电子数据库、完善药品管理、协助医保报销等辅助措施,畅通儿童血友病患儿的双向转诊路径,能合理配置医疗资源、带动地方专业医疗能力提升、合理应用罕见病药品、提高医保基金使用效率。通过三医联动加强儿童罕见病的诊疗服务能力,保障疑难重症患儿救治,提升高质量诊疗的可及性,有效减轻患儿疾病经济负担。Beijing Children’s Hospital affiliated to the Capital Medical University set up a three-tiered system for hemophilia and explore solutions for local and remote referral modes.Through the establishment of electronic database,improving drug management,assisting medical insurance reimbursement and other auxiliary measures,it smooths the two-way referral path of children with hemophilia.It can rationally allocate medical resources,promote the development of local professional medical ability,make rational use of rare disease drugs,improve the efficiency of medical insurance funds,strengthen the service capability of children with rare diseases through the joint reform of three medical systems,and ensure the treatment of difficult and severe child patients,improve the accessibility of high-quality diagnosis and treatment,effectively reduce the financial burden of patients.

关 键 词：儿童 血友病 双向转诊 

分 类 号：R197.323.2[医药卫生—卫生事业管理]