孤独症谱系障碍患儿照顾者疾病获益感影响因素及其与ABA训练效果关系研究  

Factors influencing the benefit finding of caregivers of children with autism spectrum disorder and their relationship with the results of ABA training

作　　者：王东明 翁娇 詹薇 殷世龙 吴长娣 张富芹 谢秋蓉 陈益专 Wang Dongming;Weng Jiao;Zhan Wei;Yin Shilong;Wu Zhangdi;Zhang Fuqin;Xie Qiurong;Chen Yizhuan(The Third Hospital of Longyan City,Longyan 364000,Fujian,China)

机构地区：[1]龙岩市第三医院,福建龙岩364000

出　　处：《临床心身疾病杂志》2024年第1期65-69,共5页Journal of Clinical Psychosomatic Diseases

基　　金：福建省医学创新课题(编号2020CXB042)。

摘　　要：目的探讨孤独症谱系障碍(ASD)患儿照顾者的疾病获益感影响因素及其与患儿应用行为分析(ABA)训练效果之间的关系。方法选取进行ABA训练的ASD患儿及照顾者各50例。采用照顾者疾病获益感量表、简式育儿压力问卷、疾病家庭负担量表、社会支持评定量表、心理弹性量表及焦虑自评量表评估照顾者的疾病获益感、养育压力、家庭负担、社会支持、心理弹性与焦虑水平,采用行为学观察录像评估照顾者的训练忠诚度,采用孤独症疗效评估量表评估ASD患儿的训练效果。运用Pearson相关分析、中介效应检验等进行数据分析。结果照顾者疾病获益感量表评分为(50.64±18.90)分,简式育儿压力问卷评分为(111.06±28.86)分,疾病家庭负担量表评分为(30.18±13.42)分,社会支持评定量表评分为(30.77±6.86)分,心理弹性量表评分为(49.10±23.23)分,焦虑自评量表评分为(30.54±8.52)分,训练忠诚度得分为(4.19±1.52)分,孤独症疗效评估量表差值为(6.12±4.20)分。照顾者疾病获益感与照顾者育儿压力、家庭负担、焦虑水平呈显著负相关(P<0.05或0.01),与照顾者社会支持水平、心理弹性、家庭人均月收入、训练者忠诚度、孤独症疗效评估量表差值呈显著正相关(P<0.05或0.01);照顾者训练忠诚度与孤独症疗效评估量表差值呈显著正相关(P<0.01)。照顾者疾病获益感在训练忠诚度与训练效果间起中介作用,间接效应显著(效应值为0.048,95%CI为0.013~0.348)。结论在临床中应重视ASD患儿照顾者的疾病获益感,以提升照顾者的训练忠诚度,增强ASD患儿的临床训练效果。Objective To explore the factors inf luencing the benefit finding of caregivers of children with autism spect rum disorder(ASD)and their relationship with the results of applied behavior analysis(ABA)training.Methods Fifty ASD child ren undergoing the ABA training from the 3rd Hospital of Longyan City from Oct.2021 to Mar.2022 and 50 their caregivers were selected.Such indexes were assessed in caregivers as benefit finding,parenting stress,family burden,social support,resilience,and anxiety levels using the Benefit Finding Scale(BFS),Parenting Stress Index Short Form(PSI-SF),Family Burden Scale of Diseases(FBSD),Social Support Rating Scale(SSRS),Connor-Davidson Resilience Scale(CDRS),and Self-rating Anxiety Scale(SAS),training loyalties of caregivers done adopting behavioral observation video,and training effects of ASD children done adopting the Autism Treatment Evaluation Checklist(ATEC).Data analyses were conducted using Pearson correlation analysis and mediating effect test.Results Caregivers'score on the BFS,PSI-SF,FBSD,SSRS,CDRS,SAS,and training loyalty was 50.64±18.90,111.06±28.86,30.18±13.42,30.77±6.86,49.10±23.23,30.54±8.52,4.19±1.52,respectively,and the difference value of the ATEC 6.12±4.20.Benefit finding of caregivers was significantly negatively correlated with parenting stress,family burden,and anxiety levels(P<0.05 or 0.01)and positively to social support levels,psychological resilience,family per capita monthly income,training loyalty,and difference value of the ATEC(P<0.05 or 0.01),and so was training loyalty of caregivers to difference value of the ATEC(P<0.01).Benefit finding of caregivers played a mediating role between training loyalty and effect,indirect effect was significant(effect value=0.048,95%CI=0.013~0.348).Conclusion Attention should be paid to the benefit finding of caregivers of ASD children to promote training loyalty of caregivers and enhance training effect of ASD children,clinically.

关 键 词：孤独症谱系障碍 疾病获益感 照顾者 训练疗效 

分 类 号：R322.81[医药卫生—人体解剖和组织胚胎学]