恶性肿瘤患儿死亡后父母心理调节方式的质性研究  

Clinical Nursing A qualitative study on parents′psychological adjustment strategy of children with cancer after death

作　　者：蒋向玲 向霞[2] 徐敏玲 Jiang Xiangling;Xiang Xia;Xu Minling(Otology Department,Foshan First People′s Hospital,Foshan 528000,China;Nursing Department,Foshan First People′s Hospital,Foshan 528000,China;Department of Oncology,Foshan First People's Hospital,Foshan 528000,China)

机构地区：[1]佛山市第一人民医院耳科,佛山528000 [2]佛山市第一人民医院护理部,佛山528000 [3]佛山市第一人民医院肿瘤科,佛山528000

出　　处：《中国实用护理杂志》2024年第12期918-924,共7页Chinese Journal of Practical Nursing

基　　金：佛山市卫生健康局医学科研课题(20220148)。

摘　　要：目的探讨恶性肿瘤患儿死亡后父母心理调节的方式与不足,为指导患儿父母心理调节提供借鉴措施。方法采用目的抽样法,于2022年6—12月从佛山市第一人民医院、中山大学肿瘤防治中心、广州市妇女儿童医疗中心3所医院的病历或随访资料中,选取已死亡的恶性肿瘤患儿病例,联系其父母进行半结构式访谈,最终完成访谈共11名。对访谈内容使用Colaizzi七步分析法进行分析、归纳总结和主题提炼。结果11名被访谈者年龄为28~42岁,男3名,女8名。恶性肿瘤患儿父母面对患儿死亡的心理调节有多种方式,主要包括5个主题:自我调节可促进积极应对,但缺乏坚定理念;专业人员的指导能缓解茫然无措和矛盾心理,但专业人员对哀伤辅导缺乏关注;家庭支持可缓解负性情绪,但缺乏长期支持;同伴支持可促进情感表达,但缺乏可及平台;社会团体可给予疏导支持,但缺乏足够资源。结论恶性肿瘤患儿死亡后其父母心理调节方式多样,但存在不足,医务人员应根据心理调节方式的不足,制订针对性的哀伤辅导支持,促进其早日回归社会。Objective To explore the methods and deficiencies of parents′psychological regulation after the death of children with cancer,so as to provide reference measures for guiding the psychological regulation of children′s parents.Methods From June to December 2022,used purposive sampling to select case of children diagnosed with cancer but confirmed to be dead from the medical records or follow-up data of Foshan First People′s Hospital,Sun Yat sen University Cancer Prevention and Treatment Center,and Guangzhou Women and Children′s Medical Center.The research group contacted their parents for semi-structured interviews and a total of 11 people completed the interview.Colaizzi analysis was used to analyze,summarize and extract the topic of the interview.Results Totally 11 interviewees aged 28-42,including 3 males and 8 females.The psychological adjustment methods and deficiencies of parents of children with cancer after death mainly included five themes:self-regulation could promote positive coping,but lack of firm ideas;professional guidance could relieve confusion and ambivalence,but professionals payed little attention to grief counseling;family support could alleviate negative emotions,but lack of long-term support;peer support could promote emotional expression,but lack of accessible platform;social groups could provide guidance and support,but lack of sufficient resources.Conclusions After the death of children with cancer,their parents have various ways of psychological adjustment,but there are some shortcomings.According to the deficiency of psychological regulation,medical staff should formulate targeted grief counseling support to promote their early return to society.

关 键 词：儿童 恶性肿瘤 死亡 父母 心理调节 

分 类 号：R473.73[医药卫生—护理学]