晚期癌症患者替代决策者安宁疗护问题提示列表的构建  

Development of a question prompt list for surrogate decision maker in hospice care for patients with advanced cancer

作　　者：刘亚菲 罗蕾[2] 刘昌林 李蕊 刘茂 Liu Yafei;Luo Lei;Liu Changlin;Li Rui;Liu Mao(School of Medicine,University of Electronic Science and Technology of China,Chengdu 610054,China)

机构地区：[1]电子科技大学医学院,四川成都610054 [2]四川省肿瘤临床医学研究中心,四川省肿瘤医院·研究所,四川省癌症防治中心,电子科技大学附属肿瘤医院护理部

出　　处：《护理学杂志》2024年第10期12-15,25,共5页Journal of Nursing Science

摘　　要：目的构建安宁疗护问题提示列表,为晚期癌症患者替代决策者主动获取安宁疗护相关信息提供参考。方法2023年1-8月,在文献回顾和半结构式访谈基础上归纳整理晚期癌症患者替代决策者的信息需求主题及相应条目,通过专家函询和预调查优化问题提示列表内容。结果构建的晚期癌症患者替代决策者安宁疗护问题提示列表包括7个一级条目、44个二级条目,主题涵盖安宁疗护、治疗决策、症状管理、临终准备、决策辅助、心理及情感支持、社会支持7个方面。结论构建的安宁疗护问题提示列表内容全面、可靠,有助于替代决策者向医护人员获取关于安宁疗护和决策所需信息,减少其在安宁疗护决策过程中可能面临的决策冲突及延迟情况。Objective To construct a hospice care question prompt list and provide a relevance to surrogate decision makers for advanced cancer patients proactively access hospice care related information.Methods From January to August 2023,the information need themes and corresponding entries of surrogate decision makers for patients with advanced cancer were summarised through a literature review and semi-structured interviews.The study optimised the content of the question prompt list through 2 rounds of expert correspondence with 20 experts and pre-surveys.Results The final question prompt list of hospice care for surrogate decision makers in advanced cancer patients included 7 primary items and 44 secondary items,covering topics such as hospice care,treatment decision-making,symptom management,end-of-life preparedness,decision-making aids,psychological and emotional support,and social support.Conclusion The constructed hospice care question prompt list is comprehensive and reliable.It can help surrogate decision makers obtain the necessary information about hospice care and decision-making,and reduce decision conflicts and delays that they may face in the hospice care decision making process.

关 键 词：晚期癌症 替代决策者 问题提示列表 决策辅助 决策冲突 决策延迟 社会支持 安宁疗护 

分 类 号：R473.73[医药卫生—护理学] R48[医药卫生—临床医学]