“生命之树”集体叙事实践在安宁疗护患者家庭照顾者中的应用  

Application of"Tree of Life"collective narrative practice in family caregivers of hospice care

作　　者：王娟[1] 夏源 姚玉秀 高璟仪 陈玲[2] WANG Juan;XIA Yuan;YAO Yuxiu;GAO Jingyi;CHEN Ling(Department of Palliative Medicine,Xinjiang Medical University Tumor Hospital,Urumqi,830011,China)

机构地区：[1]新疆医科大学附属肿瘤医院姑息医学科,乌鲁木齐市830011 [2]新疆医科大学附属肿瘤医院护理部,乌鲁木齐市830011 [3]新疆医科大学护理学院

出　　处：《中国护理管理》2024年第6期840-845,共6页Chinese Nursing Management

基　　金：新疆维吾尔自治区自然科学基金(2022D01C513)。

摘　　要：目的:评价“生命之树”集体叙事实践在安宁疗护终末期癌症患者家庭照顾者中的应用效果,为照顾者关怀工作的开展提供实践依据。方法:选取乌鲁木齐市某三级甲等肿瘤专科医院2023年1月—6月接受安宁疗护的终末期癌症患者家庭照顾者76例作为研究对象,随机分为对照组(n=37)和实验组(n=39)。对照组采用常规入院宣教及心理护理,实验组在对照组的基础上采用“生命之树”集体叙事实践。两组干预前后分别采用预期性悲伤量表、Herth希望量表和生命威胁性疾病家庭照顾者生存质量量表进行调查,评价干预效果。结果:干预后,实验组Herth希望量表和生命威胁性疾病家庭照顾者生存质量量表得分均高于对照组,预期性悲伤量表评分低于对照组,组间比较差异均具有统计学意义(P<0.05)。结论:“生命之树”集体叙事实践可以有效降低家庭照顾者的预期性悲伤,有利于提高家庭照顾者的希望水平及生存质量。Objective:To evaluate the application effects of"Tree of Life"collective narrative practice in family caregivers of hospice care and provide practical basis for the care work development of caregivers.Methods:A total of 76 family caregivers of advanced cancer patients receiving hospice care at a tertiary Grade A tumor specialist hospital in Urumqi from January 2023 to June 2023 were randomly divided into control group(n=37)and experimental group(n=39).The experimental group adopted the collective narrative practice of"Tree of Life"on the basis of the control group,while the control group adopted routine admission education and psychological nursing.The Anticipated Grief Scale(AGS),Herth Hope Index(HHI)and Quality of Life Scale for Family Caregivers with Life-threatening Diseases(QOLLTI-F)were used to evaluate the intervention effects before and after intervention.Results:After intervention,the scores of HHI and QOLLTI-F in the experimental group were higher than those in the control group,and the scores of AGS were lower than those in the control group,with statistically significant differences between the two groups(P<0.05).Conclusion:The collective narrative practice of"Tree of Life"can effectively reduce the expected sadness of caregivers,which is conducive to increasing the level of hope and quality of life of family caregivers.

关 键 词：生命之树 集体叙事实践 安宁疗护 家庭照顾者 

分 类 号：R47[医药卫生—护理学] R197[医药卫生—临床医学]