X-连锁无丙种球蛋白血症患儿皮下输注人免疫球蛋白的护理  

Nursing care of X-linked agammaglobulinemia children treated with subcutaneous immunoglobulin

作　　者：李凤婷[1] 王蕊 刘小玉 李佳丽 王妍 赵迺瑄 杨芹[2] Li Fengting;Wang Rui;Liu Xiaoyu;Li Jiali;Wang Yan;Zhao Naixuan;Yang Qin(Department of Rheumatology and Immunology,Beijing Children′s Hospital of Capital Medical University,National Center for Children′s Health of China,Beijing 100045,China)

机构地区：[1]国家儿童医学中心、首都医科大学附属北京儿童医院风湿免疫科,北京100045 [2]国家儿童医学中心首都医科大学附属北京儿童医院护理部,北京100045

出　　处：《中国实用护理杂志》2024年第18期1390-1394,共5页Chinese Journal of Practical Nursing

基　　金：首都医科大学附属北京儿童医院护理专项(YHL201904)。

摘　　要：总结9例中国内地首次应用皮下输注人免疫球蛋白治疗的X-连锁无丙种球蛋白血症患儿的护理经验。护理要点:大剂量皮下输注人免疫球蛋白中国内地没有先例,因此需做好充分的输注前准备与护理,注意药物输注的观察与护理,做好居家用药指导,关注心理护理,确保患者从医院用药顺利过渡到居家用药。9例患儿均顺利完成皮下输注人免疫球蛋白治疗,平稳过渡到居家用药,未发生严重不良反应,效果良好。Summarize the nursing experience of 9 children with X-linked agammaglobulinemia who were first treated with subcutaneous infusion of human immunoglobulin in China's Mainland.Nursing points:there is no precedent in China's Mainland for high-dose subcutaneous infusion of human immunoglobulin,therefore,it is necessary to make sufficient preparation and care before infusion,pay attention to the observation and care of drug infusion,provide guidance on home medication,pay attention to psychological care,and ensure that patients smoothly transition from hospital medication to home medication.All 9 patients successfully completed subcutaneous injection of human immunoglobulin treatment,ensure smooth transition of patients from hospital medication to home medication.and no serious adverse reactions occurred,resulting in good results.

关 键 词：护理 原发免疫缺陷病 X-连锁无丙种球蛋白血症 皮下丙球 

分 类 号：R473.72[医药卫生—护理学]