Building Expertise on FAIR Through Evolving Bring Your Own Data(BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution  

作　　者：César H.Bernabé Lieze Thielemans Rajaram Kaliyaperumal Claudio Carta Shuxin Zhang Celia W.G.van Gelder Nirupama Benis Luiz Olavo Bonino da Silva Santos Ronald Cornet Bruna dos Santos Vieira Nawel Lalout Ines Henriques Alberto Camara Ballesteros Kees Burger Martijn G.Kersloot Friederike Ehrhart Esther van Enckevort Chris T.Evelo Alasdair J.G.Gray Marc Hanauer Kristina Hettne Joep de Ligt Arnaldo Pereira Nuria Queralt-Rosinach Erik Schultes Domenica Taruscio Andra Waagmeester Mark D.Wilkinson Egon L.Willighagen Mascha Jansen Barend Mons Marco Roos Annika Jacobsen 

机构地区：[1]Biosemantics Group,Department of Human Genetics,Leiden University Medical Centre,Leiden,The Netherlands [2]NIHR Academic Fellow in General Practice,University College London and The Royal Free NHS Foundation Trust [3]National Centre for Rare Diseases,Istituto Superiore di Sanita,Rome,Italy [4]Department of Medical Informatics,Amsterdam UMC location University of Amsterdam,Meibergdreef 9,Amsterdam,The Netherlands [5]Amsterdam Public Health,Methodology&Digital Health,Amsterdam,The Netherlands [6]Health-Rl,Utrecht,The Netherlands [7]Semantics,Services and Cybersecurity group,University of Twente,Enschede,The Netherlands [8]Department of Medical Imaging,Radboud Institute for Health Sciences,Radboud University Medical Center,Nijmegen,The Netherlands [9]Department of Medical BioSciences,Radboud University Medical Center,Nijmegen,The Netherlands [10]The Duchenne Parent Project,Veneendaal,The Netherlands [11]Departamento de Biotecnologia-Biologia Vegetal,Escuela Tecnica Superior de Ingenieria Agronomica,Alimentaria y de Biosistemas,Centro de Biotecnologia y Genomica de Plantas,Universidad Politecnica de Madrid(UPM)-Instituto Nacional de Investigacion y Tecnologia Agraria y Alimentaria-CSIC(INIA-CSIC).Campus Montegancedo,Pozuelo de Alarcon(Madrid),Spain [12]Castor,Amsterdam,The Netherlands [13]Department of Bioinformatics-BiGCaT,Maastricht University,Maastricht,The Netherlands [14]University Medical Center Groningen,University of Groningen,Groningen,The Netherlands [15]Maastricht Centre for Systems Biology(MaCSBio),Maastricht University,Maastricht,The Netherlands [16]Department of Computer Science,Heriot-Watt University,Edinburgh,UK [17]INSERM,US14-Orphanet,Plateforme Maladies Rares,Paris,France [18]Centre for Digital Scholarship,Leiden University Libraries,The Netherlands [19]Center for Molecular Medicine,Cancer Genomics Netherlands,Department of Genetics,University Medical Center Utrecht,University Utrecht,The Netherlands [20]University of Aveiro,DETI/IEETA,Aveiro,Portugal [21]GO FAIR Foundation,Leiden,The Netherland

出　　处：《Data Intelligence》2024年第2期429-456,共28页数据智能（英文）

基　　金：support from the RD-Connect project(funded from the European Community's Seventh Framework Program under grant agreement n°305444"RD-CONNECT");ELIXIR and ELIXIR-EXCELERATE(Grant number EU H2020#676559);the Istituto Superiore di Sanita(ISS),the Leiden University Medical Center(LUMC);the University Medical Center Groningen,and the Dutch Techcentre for Life Sciences(DTL)between 2014 and 2018.From 2019 to 2023,the RD-BYOD has been funded by the European Joint Programme Rare Diseases(EJP RD)and its partners(European Union Horizon 2020 Research and Innovation Programme under Grant Agreement n°825575),and we are grateful for their continued support.

摘　　要：Since 2014,"Bring Your Own Data"workshops(BYODs)have been organised to inform people about the process and benefits of making resources Findable,Accessible,Interoperable,and Reusable(FAIR,and the FAIRification process).The BYOD workshops'content and format differ depending on their goal,context,and the background and needs of participants.Data-focused BYODs educate domain experts on how to make their data FAIR to find new answers to research questions.Management-focused BYODs promote the benefits of making data FAIR and instruct project managers and policy-makers on the characteristics of FAIRification projects.Software-focused BYODs gather software developers and experts on FAIR to implement or improve software resources that are used to support FAIRification.Overall,these BYODs intend to foster collaboration between different types of stakeholders involved in data management,curation,and reuse(e.g.domain experts,trainers,developers,data owners,data analysts,FAIR experts).The BYODs also serve as an opportunity to learn what kind of support for FAIRification is needed from different communities and to develop teaching materials based on practical examples and experience.In this paper,we detail the three different structures of the BYODs and describe examples of early BYODs related to plant breeding data,and rare disease registries and biobanks,which have shaped the structure of the workshops.We discuss the latest insights into making BYODs more productive by leveraging our almost ten years of training experience in these workshops,including successes and encountered challenges.Finally,we examine how the participants'feedback has motivated the research on FAIR,including the development of workflows and software.

关 键 词：FAIR FAIRification FAIR expertise Bring Your Own Data Workshop BYOD 

分 类 号：TP311.13[自动化与计算机技术—计算机软件与理论]