中青年居家腹膜透析患者症状管理体验的质性研究  

Qualitative research on symptom management experience of young and middle-aged home peritoneal dialysis patients

作　　者：周浩然 朱晓萍[3] 王丽雅[2] 樊晶晶[2] 杜冰 Zhou Haoran;Zhu Xiaoping;Wang Liya;Fan Jingjing;Du Bing(Tongji University School of Medicine,Shanghai 200040,China;Department of Nephrology,Tenth People's Hospital of Tongji University,Shanghai 200040,China;Department of Nursing,Tenth People's Hospital of Tongji University,Shanghai 200040,China)

机构地区：[1]同济大学医学院,上海200040 [2]同济大学附属第十人民医院肾内科,上海200040 [3]同济大学附属第十人民医院护理部,上海200040

出　　处：《中华现代护理杂志》2024年第21期2878-2884,共7页Chinese Journal of Modern Nursing

基　　金：同济大学医学院护理学院(筹)学科建设三年行动计划(JS2210101)。

摘　　要：目的探讨中青年居家腹膜透析患者的症状管理体验。方法采用描述性现象学研究方法,根据目的抽样法选取13例中青年腹膜透析患者进行半结构式访谈,并对访谈资料进行分析整理、提炼主题。结果共归纳出4个主题,包括症状管理存在的困境(症状管理知识匮乏、症状感知能力不足)、症状管理效果不佳带来的影响(日常生活行为受限、家庭角色减弱、重返职场受阻、社交活动退缩、经济负担加重)、两极化的症状管理应对策略(积极应对、消极应对)、多方面的症状管理需求(憧憬新型治疗方式、期盼疾病知识普及、渴望多方面社会支持)。结论中青年腹膜透析患者居家症状自我管理过程中遇到的障碍和需求较多,提示医护人员需结合中青年腹膜透析患者的特点和心理,实施针对性干预措施,提高其症状管理能力。Objective To explore the symptom management experience in young and middle-aged patients with home peritoneal dialysis.Methods Using the descriptive phenomenological research method and purposive sampling method,13 young and middle-aged peritoneal dialysis patients were selected for semi-structured interviews,and the interview data was analyzed and sorted out to extract themes.Results A total of four themes were summarized,including difficulties in symptom management(lack of symptom management knowledge,insufficient symptom perception ability),effect of poor symptom management effectiveness(limited daily life behavior,weakened family roles,obstacles in returning to the workplace,withdrawal of social activities and increased economic burden),polarized symptom management coping strategies(positive and negative responses)and multifaceted symptom management needs(longing for new treatment methods,hoping for disease knowledge popularization and craving for social support in various aspects).Conclusions There are many obstacles and needs in the process of symptom self-management of young and middle-aged home peritoneal dialysis patients.It is suggested that medical staff should combine the characteristics and psychology of middle-aged and young peritoneal dialysis patients,implement targeted intervention measures,and improve their symptom management ability.

关 键 词：腹膜透析 中青年 症状管理 质性研究 

分 类 号：R473.2[医药卫生—护理学]