年轻乳腺癌患者妻子角色期望的质性研究  

The role expectations of young women as wives after breast cancer treatment:A qualitative study

作　　者：高文娟 张倩 王丹 李晓旭 张琳萍 徐梦娇 韩静 Wenjuan Gao;Qian Zhang;Dan Wang;Xiaoxu Li;Linping Zhanga;Mengjiao Xu;Jing Han(School of Nursing,Xuzhou Medical University,Jiangsu,China;Department of Oncology Center,Affiliated Hospital of Xuzhou Medical University,Jiangsu,China;Department of Nail and Breast Surgery,Affiliated Hospital of Xuzhou Medical University,Jiangsu,China)

机构地区：[1]School of Nursing,Xuzhou Medical University,Jiangsu,China [2]Department of Oncology Center,Affiliated Hospital of Xuzhou Medical University,Jiangsu,China [3]Department of Nail and Breast Surgery,Affiliated Hospital of Xuzhou Medical University,Jiangsu,China

出　　处：《International Journal of Nursing Sciences》2024年第3期366-373,I0004,共9页国际护理科学（英文）

基　　金：funded by the National Natural Science Foundation of China(grant number:72204209);the China Health Talents Training Project(grant number:RCLX2320050).

摘　　要：目的通过对自我和身份的反思,探索年轻乳腺癌患者为回归家庭需要履行的妻子角色期望,为医务工作者制订癌症家庭康复的相关干预措施提供参考依据。方法采用描述性现象学方法和目的取样法。于2023年3月-4月在江苏省徐州市某三级甲等医院的乳腺外科和肿瘤内科选取年轻乳腺癌患者及其配偶进行半结构化的面对面访谈。访谈内容被逐字转录,采用科莱兹现象学方法进行分析。结果16例乳腺癌患者和6名配偶参与了访谈,平均年龄分别为(35.95±3.36)岁和(37.67±5.28)岁。在治疗和康复期间,关于年轻乳腺癌患者妻子角色期望内容共提炼出3个主题,8个子主题:自尊自爱(保障自己的生命、坦然面对疾病、重拾女性角色的自信);夫妻关系的调适(和谐有效的夫妻沟通、为婚姻和爱情给予支持、共创美好的夫妻生活);协助家庭康复(减轻配偶的照护与经济负担、家庭日常的管理)。结论年轻乳腺癌患者及其配偶对妻子角色的期望主要包括自我、夫妻和家庭三个方面。自尊和自爱是最基本的期望,而调整夫妻关系和协助家庭康复则是更高的期望。Objectives:Through the reflection of young breast cancer women on their selves and identities,we explored expectations of the wife role that they need to fulfill to return to their families,aimed to provide a reference basis for medical professionals to develop interventions related to cancer family rehabilitation.Methods:Descriptive phenomenological methods and purposive sampling were used.Young breast cancer patients and their spouses were selected for semi-structured face-to-face interviews in the study from March to April 2023 at the department of breast surgery and oncology center of a Class A tertiary hospital in Xuzhou City,China.The interviews were transcribed verbatim and analyzed using Colaizzi’s phenomenological approach.Results:Twenty patients and six spouses were interviewed.The mean patient age was(35.95±3.36)years,and the mean spouse was(37.67±5.28)years.Young breast cancer patients were concerned about three main wife expectations during their treatment and rehabilitation:preserving self-love and selfesteem(paying attention to physical health,embracing the disease,and regaining confidence in female characters);adjustment of conjugal relationships(harmonious and effective couple communication,providing support for marriage and love,and creating a beautiful married life together);assisting in family recovery(relieving stress on spouses from caregiving and finances,and management of daily household chores).Conclusions:The wife role expectations of young breast cancer women and their spouses encompass three core aspects:self,couple,and family.Self-esteem and self-love are the most fundamental expectations of the wife role,while adjusting the couple’s relationship and assistance in family rehabilitation represent higher expectations.This study can help healthcare professionals and cancer families gain a more comprehensive understanding of the wife role expectations for young cancer women,thereby enabling the development of couple-centered interventions to promote patient recovery and enhance the

关 键 词：乳腺癌 期望 家庭 定性研究 角色 妻子 

分 类 号：R473.73[医药卫生—护理学]