慢性病患儿父母感知脆弱的负性影响及干预研究进展  

Research progress on negative impact and intervention of parental perceptions of child vulnerability of children with chronic diseases

作　　者：文谦 鲜于云艳[2] 李娜 刘慧妮 Wen Qian;Xianyu Yunyan;Li Na;Liu Huini(Department of Pediatrics,Renmin Hospital of Wuhan University,Wuhan 430060,China;Nursing Department,Renmin Hospital of Wuhan University,Wuhan 430060,China;Nursing Department,Shanxi Jincheng Maternity and Child Health Care Hospital,Jincheng 048026,China;Nursing Department,the Second Xiangya Hospital of Central South University,Changsha 410007,China)

机构地区：[1]武汉大学人民医院儿科,武汉430060 [2]武汉大学人民医院护理部,武汉430060 [3]山西晋城妇幼保健院护理部,晋城048026 [4]中南大学湘雅二院护理部,长沙410007

出　　处：《中华现代护理杂志》2024年第23期3094-3098,共5页Chinese Journal of Modern Nursing

基　　金：中华医学会杂志社2021-2022年护理学科研究课题(CMAPH-NRD2021062);湖北省卫健委2022年湖北省重点实验室开放项目(2022KFH002);武汉市护理学会2022年度立项科研课题(WHHL202208)。

摘　　要：慢性病对患儿及其父母都带来了重大改变,相对于患儿,患儿父母更易感知到患儿的脆弱。即使医学上有依据表明慢性病患儿病情已处于稳定状态,但父母仍认为他们的孩子面对疾病、伤害或死亡十分脆弱,即慢性病患儿父母感知脆弱(PPCV)。PPCV普遍存在于慢性病患儿中,会对患儿及其父母产生较大负性影响。本文回顾了慢性病患儿PPCV的概念、评估工具,并重点围绕慢性病患儿PPCV对患儿及其父母的负性影响和干预策略进行综述,以期为今后慢性病患儿PPCV的评估、预防与干预提供参考。Chronic diseases bring significant changes to both the child and their parents.Compared to the child,the child's parents are more likely to perceive the child's vulnerability.Even though there is medical evidence to suggest that children with chronic diseases are in a stable state,parents still believe that their children are very vulnerable to disease,injury,or death,that is,parental perceptions of child vulnerability(PPCV).PPCV is commonly present in children with chronic diseases and can have a significant negative impact on both the child and their parents.This paper reviews the concept and evaluation tools of PPCV in children with chronic diseases,and focuses on the negative impact and intervention strategies of PPCV on children and their parents,so as to provide reference for the evaluation,prevention,and intervention of PPCV in children with chronic diseases.

关 键 词：综述 慢性病 儿科 父母 感知脆弱 负性影响 

分 类 号：R473.72[医药卫生—护理学]