青年脑肿瘤病人配偶照顾者经济毒性与照顾负担动态变化的纵向研究  

Dynamic changes of financial toxicity and care burden of young brain tumor spouse caregivers:a longitudinal study

作　　者：许健[1,2,3,4] 周东阳 张驰[1,2,3,4] 王艳 陈玉升[1,2,4] 冯英璞 XU Jian;ZHOU Dongyang;ZHANG Chi;WANG Yan;CHEN Yusheng;FENG Yingpu(Henan Provincial People's Hospital,Henan 450003 China)

机构地区：[1]河南省人民医院,河南450003 [2]河南省人民医院脑血管病医院 [3]河南省护理医学重点实验室 [4]郑州大学人民医院

出　　处：《护理研究》2024年第17期3031-3037,共7页Chinese Nursing Research

基　　金：2022年河南省科技攻关项目,编号:222102310056。

摘　　要：目的:探讨青年脑肿瘤病人配偶照顾者在病人术后半年内经济毒性及照顾负担的动态变化,并分析二者间的相互预测关系。方法:基于便利抽样法,在病人术后14 d、3个月、6个月时采用一般情况调查表、患者报告结局的经济毒性综合评分量表修订版、照顾者负担量表对216名青年脑肿瘤配偶照顾者开展随访调查。结果:术后6个月内,配偶照顾者照顾负担呈下降趋势(P<0.01),经济毒性呈先上升后平稳趋势(P<0.05)。交叉滞后模型显示,术后14 d的经济毒性对术后3个月照顾负担有影响(P<0.01),术后3个月的经济毒性对术后6个月的照顾负担有影响(P<0.01)。结论:青年脑肿瘤病人配偶照顾者经济毒性及照顾负担在病人术后半年内呈动态变化,经济毒性能够影响随后的照顾负担。医护人员应重视青年脑肿瘤配偶照顾者的经济毒性水平,及时实施心理疏导,降低经济毒性对配偶照顾者的心理困扰,以减轻其照顾负担。Objective:To explore the dynamic changes of financial toxicity and care burden of young brain tumor spousal caregivers within six months after surgery,and analyze the predictive relationship between them.Methods:Based on the convenient sampling method,216 spousal caregivers of young patients with brain tumor were followed up at 14 days,3 months and 6 months after surgery with the general data questionnaire,Comprehensive Scores for Financial Toxicity based on the Patient⁃Reported Outcome Measures(COST⁃PROM),and the Caregiver Burden Scale.Results:Within 6 months after operation,the care burden of young spouse caregivers showed a downward trend(P<0.01),and the financial toxicity showed a trend of rising first and then maintaining(P<0.05).The cross⁃lagged model showed that the financial toxicity of 14 days after operation could affected the care burden of 3 months after operation(P<0.01),and the financial toxicity of 3 months after operation could also affected the care burden of 6 months after operation(P<0.01).Conclusion:The financial toxicity and care burden of spousal caregivers of young patients with brain tumors shows dynamic changes within 6 months after surgery,and the financial toxicity can affect the subsequent care burden.Medical staff should pay attention to the level of financial toxicity of spousal caregivers,timely implement psychological counseling and intervention,reduce the psychological distress of financial toxicity and care burden of the spousal caregivers.

关 键 词：脑肿瘤 青年 配偶 经济毒性 照顾负担 纵向研究 交叉滞后模型 

分 类 号：R473.73[医药卫生—护理学]