基于广西区域性特点构建肝移植患儿随访模式的临床研究  

Clinical research on the construction of follow⁃up mode in children with liver transplantation based on Guangxi regional characteristics

作　　者：黄莹[1] 杨巧玲[1] 黄萍[1] 潘文琦[1] 陈代祯[1] 李洁芳 HUANG Ying;YANG Qiaoling;HUANG Ping;PAN Wenqi;CHEN Daizhen;LI Jiefang(Department of Organ Transplantation,the First Affiliated Hospital of Guangxi Medical University,Nanning 530021,Guangxi,China)

机构地区：[1]广西医科大学第一附属医院器官移植科,广西南宁市530021

出　　处：《广西医学》2024年第9期1355-1360,共6页Guangxi Medical Journal

基　　金：广西壮族自治区卫生健康委员会自筹经费科研课题(Z20190258、Z20200589)。

摘　　要：目的 构建基于广西区域性特点的肝移植患儿随访模式,并探讨其应用效果。方法 将120例肝移植患儿分为对照组66例、观察组54例。对照组采用常规电话随访模式进行随访,观察组采用基于广西区域性特点的肝移植患儿随访模式进行随访。比较两组出院前及出院后1个月、3个月、6个月的照顾者照顾能力[家属照顾能力量表(FCTI)评分]、患儿免疫抑制剂服药依从性[Basel免疫抑制药物依从性评估量表(BAASIS)评分],比较两组术后1年的随访依从性(随访依从性调查问卷评分)。结果 两组的FCTI评分、BAASIS评分差异有统计学意义,有随时间变化而变化的趋势,分组与时间存在交互效应,且出院后3个月、6个月,观察组的FCTI评分低于对照组,BAASIS评分高于对照组(P<0.05)。术后1年,观察组随访依从性调查问卷评分高于对照组(P<0.05)。结论 基于广西区域性特点的肝移植患儿随访模式可以提高照顾者的照顾能力和随访依从性,以及患儿免疫抑制剂服药依从性。Objective To construct the follow-up mode in children with liver transplantation based on Guangxi regional characteristics,and to explore its application effect.Methods A total of 120 children with liver transplantation were assigned to control group(66 cases)or observation group(54 cases).The control group received routine telephone follow-up mode for follow-up,whereas the observation group was followed up by follow-up mode in children with liver transplantation based on Guangxi regional characteristics.Caregiver care ability of Family Caregiver Task Inventory(FCTI)score,and medication compliance of immunosuppressive drugs in children in terms of Basel Assessment of Adherence to Immunosuppressive Medication Scale(BAASIS)score were compared between the two groups before discharge,and 1,3,6 months after discharge.The compliance of follow-up(follow-up compliance inventory score)1 year after operation was compared between the two groups.Results There were statistically significant differences in scores of FCTI and BAASIS between the two groups,and there was a tendency to change over time,as well as there was an interaction effect between grouping and time;furthermore,the observation group yielded a lower FCTI score,while a higher BAASIS score as compared with the control group 3 and 6 months after discharge(P<0.05).The score of follow-up compliance inventory in the observation group was higher than that in the control group after 1 year of operation(P<0.05).Conclusion Follow-up mode in children with liver transplantation based on Guangxi regional characteristics can increase care ability of caregivers and improve children's follow-up compliance,as well as improve children's compliance of medication for immunosuppressive drugs.

关 键 词：肝移植 儿童 随访 区域性 广西壮族自治区 

分 类 号：R473.6[医药卫生—护理学]