医院-社区-家庭联动护理在难治性癫痫患儿中的应用效果  

Application effects of hospital-community-family linkage nursing in children with refractory epilepsy

作　　者：张文婉 ZHANG Wenwan(Department of Pediatric Neurological Rehabilitation of Henan Provincial People’s Hospital,Zhengzhou 450000 Henan,China)

机构地区：[1]河南省人民医院儿科神经康复病区,河南郑州450000

出　　处：《中国民康医学》2024年第20期162-165,共4页Medical Journal of Chinese People’s Health

摘　　要：目的:观察医院-社区-家庭联动护理在难治性癫痫患儿中的应用效果。方法:选取2021年5月至2023年5月该院收治的94例难治性癫痫患儿进行前瞻性研究,采用随机数字表法将其分为观察组与对照组各47例。对照组采取常规护理,观察组采取医院-社区-家庭联动护理,比较两组护理前后家长癫痫知识掌握度评分、生酮饮食依从性评分、癫痫发作频率、癫痫发作持续时间、生命质量[癫痫儿童生活质量量表(QOLCE)]评分和家长满意度评分。结果:护理后,观察组发病原因、临床症状、应急处理、日常管理等家长癫痫知识掌握度评分均高于对照组,差异有统计学意义(P<0.05);护理后,观察组饮食比例、饮食量、按时进食等生酮饮食依从性评分均高于对照组,差异有统计学意义(P<0.05);护理后,观察组癫痫发作频率低于对照组,持续时间短于对照组,差异均有统计学意义(P<0.05);护理后,观察组社会功能、情感健康、行为、认知功能、躯体功能等QOLCE评分均高于对照组,差异有统计学意义(P<0.05);观察组沟通态度、需求满足、康复指导、操作技术、护理效果等家长满意度评分均高于对照组,差异有统计学意义(P<0.05)。结论:医院-社区-家庭联动护理应用于难治性癫痫患儿中可提高家长癫痫知识掌握度、家长满意度评分,提高患儿生酮饮食依从性和生命质量,降低癫痫发作频率,缩短癫痫发作持续时间,效果优于常规护理。Objective:To observe application effects of hospital-community-family linkage nursing in children with refractory epilepsy.Methods:A prospective study was conducted on 94 children with refractory epilepsy admitted to the hospital from May 2021 to May 2023.They were divided into observation group and control group by using the random number table method,47 cases in each group.The control group received routine nursing,while the observation group received the hospital-community-family linkage nursing.The scores of parents’epilepsy knowledge mastery and ketogenic diet compliance,the seizure frequency,the seizure duration,the quality of life score,and the parents’satisfaction scores were compared between the two groups[quality of life in children with epilepsy(QOLCE)]before and after the nursing.Results:After the nursing,the scores of parents’epilepsy knowledge mastery such as etiology,clinical symptoms,emergency treatment and daily management in the observation group were higher than those in the control group,and the differences were statistically significant(P<0.05).After the nursing,the compliance scores of ketogenic diet such as diet proportion,diet volume and eating on time in the observation group were higher than those in the control group,and the differences were statistically significant(P<0.05).After the nursing,the seizure frequency in the observation group was less than that in the control group,the duration was shorter than that in the control group,and the differences were statistically significant(P<0.05).After the nursing,the QOLCE scores of social function,emotional health,behavior,cognitive function and physical function in the observation group were higher than those in the control group,and the differences were statistically significant(P<0.05).Further,the parents’satisfaction scores of communication attitude,demand satisfaction,rehabilitation guidance,operation technology and nursing effect in the observation group were higher than those in the control group,and the differences were stat

关 键 词：难治性癫痫 儿童 医院-社区-家庭联动护理 生酮饮食 生命质量 依从性 满意度 

分 类 号：R473.74[医药卫生—护理学]