终末期肿瘤患者主要照顾者对数字化健康干预认知及需求的质性研究  

Perceptions and needs of family caregivers of terminal cancer patients for digital health interventions:a qualitative study

作　　者：许亚文 王英[2] 谌永毅[3] 肖亚洲 郭俊晨 刘阳 赵海伦 Xu Yawen;Wang Ying;Chen Yongyi;Xiao Yazhou;Guo Junchen;Liu Yang;Zhao Hailun(Nursing Teaching and Research Department of Hunan Cancer Hospital,Changsha 410013,China;Hunan Cancer Hospital Pain Hospice Ward,Changsha 410013,China;Hunan Cancer Hospital Nursing Department,Changsha 410013,China;Hunan Provincial People′s Hospital President′s Office,Changsha 410013,China)

机构地区：[1]湖南省肿瘤医院护理教研室,长沙410013 [2]湖南省肿瘤医院疼痛安宁病房,长沙410013 [3]湖南省肿瘤医院护理部,长沙410013 [4]湖南省人民医院院长办公室,长沙410013

出　　处：《中国实用护理杂志》2024年第31期2448-2454,共7页Chinese Journal of Practical Nursing

基　　金：湖南省科技厅重点研发项目(2020SK2121);湖南省卫生健康委一般项目(W20243252);湖南省临床医疗技术创新引导项目(2021SK51107)。

摘　　要：目的了解终末期肿瘤患者主要照顾者对于数字化健康干预的认知,明确其实际需求,剖析其接受数字化健康干预的障碍,以期制订针对终末期肿瘤患者主要照顾者的数字化健康干预方案。方法2024年2—3月,采用目的抽样法,对湖南省肿瘤医院疼痛安宁病房符合纳入、排除标准的终末期肿瘤患者主要照顾者就数字化健康干预的认知及需求进行半结构式访谈,以Colaizzi 7步法对访谈内容进行整理分析。结果共纳入16名终末期肿瘤患者主要照顾者接受访谈,男4名,女12名,年龄26~55岁。从访谈结果中提炼出4个主题:终末期肿瘤患者主要照顾者认同数字化健康干预的重要性;对数字化健康干预认知不足;对数字化健康干预的期待;数字化健康干预的可能干扰因素。结论终末期肿瘤患者主要照顾者对数字化健康干预认识不足,但都表现出对开展数字化健康干预服务的肯定,建议积极改善数字化健康服务的基础条件,加强宣传力度,提高主要照顾者的认知水平,积极克服相关干扰因素,逐步推进数字化健康服务的开展。ObjectiveTo understand the cognition of the family caregivers of terminal cancer patients on digital health intervention,to clarify their actual needs,and to analyze the obstacles to their acceptance of digital health intervention,so as to develop a digital health intervention plan for the family caregivers of terminal cancer patients.MethodsFrom February 2024 to March 2024,the family caregivers of 16 patients with terminal cancer in Hunan Cancer Hospital Pain Hospice Ward were selected by objective sampling,who met the inclusion and exclusion criteria were interviewed in a semi-structured manner about the cognition and needs of digital health intervention,and the interview contents were sorted and analyzed using the Colaizzi7 step method.ResultsA total of 16 family caregivers of terminal cancer patients,4 males and 12 females,aged 26-55 years,were interviewed.Four themes were distilled from the interview results:family caregivers of terminally cancer patients agree on the importance of digital health interventions;lack of awareness of digital health interventions;expectations of digital health interventions;and possible confounders affecting digital health interventions.ConclusionsThe family caregivers of terminal cancer patients had insufficient awareness of digital health intervention,but all showed affirmation of the development of digital health intervention services.It is recommended to actively improve the basic conditions of digital health services,strengthen publicity,raise the level of awareness of the family caregivers,and positively overcome the relevant interfering factors,so as to gradually promote the development of digital health services.

关 键 词：定性研究 数字化健康干预 互联网 肿瘤 主要照顾者 家属 

分 类 号：R473.73[医药卫生—护理学]