未成年人安宁疗护照顾者照护体验质性研究的Meta整合  

Qualitative research on experience of caregivers of palliative care for minors:a Meta synthesis

作　　者：康佳璐 武晓晓 吕翠婷[2] 段昕波[3] 刘伟 Kang Jialu;Wu Xiaoxiao;Lyu Cuiting;Duan Xinbo;Liu Wei(School of Nursing,Hebei University of Chinese Medicine,Shijiazhuang 050200,China;Department of Reproductive Medicine,The Fourth Hospital of Hebei Medical University,Shijiazhuang 050000,China;Oncology Department II,Hebei General Hospital,Shijiazhuang 050000,China)

机构地区：[1]河北中医药大学护理学院,石家庄050200 [2]河北医科大学第四医院生殖医学科,石家庄050000 [3]河北省人民医院肿瘤二科,石家庄050000

出　　处：《中国实用护理杂志》2024年第32期2545-2552,共8页Chinese Journal of Practical Nursing

基　　金：河北省卫生健康委员会科学研究课题(20231572);2024年河北省属高校基本科研业务费专项项目(TDSK2024001);河北中医药大学2024年研究生教育教学改革项目(XYJG2024004)。

摘　　要：目的系统评价针对未成年人安宁疗护照顾者照护体验的质性研究,以期为制订更加符合未成年安宁疗护患者及其家庭需求的照护计划提供参考。方法计算机检索Cochrane Library、澳大利亚乔安娜布里格斯研究所循证卫生保健中心图书馆、Embase、PubMed、Web of Science、CINAHL、中国知网、万方数据库、维普数据库、中国生物医学文献数据库中有关未成年安宁疗护照顾者照护体验质性研究的文献,检索时限为建库至2023年12月30日。经文献筛选和质量评价后,对纳入文献的研究结果进行整合、分析和归纳。结果共纳入11篇文献,提炼出70个研究结果,归纳为7个新类别,形成专业照顾者与亲属照顾者存在多重照顾负担,需要多方面的照护支持和专业照顾者与亲属照顾者能够共同承担患儿照护责任,积极应对照护中存在的困境,收获个人照护经验与成长2个整合结果。结论未成年人安宁疗护具有其独特性,照顾者存在多方面的照护负担和需求,需特别关注照顾者的情感体验和照护诉求,提供针对性支持和保障,以促进我国未成年人安宁疗护队伍建设,提高我国未成年人安宁疗护的服务水平。ObjectiveTo systematically review the qualitative research on the care experience of caregivers of palliative care for minors,in order to provide a reference for formulating a care plan that is more in line with the needs of palliative care for minors and their families.MethodsThe Cochrane Library,Australia Joanna Briggs Institute Evidence-based Health Care Center Library,Embase,PubMed and Web of Science,CINAHL,China National Knowledge Infrastructure,Wanfang Database,VIP Database and China Biology Medicine Disc were searched by computer for literature on qualitative research on care experience of underage hospice care caregivers from the establishment of the database to December 30,2023.ResultsA total of 11 articles were included and 70 research results were extracted,which were summarized into 7 new categories and formed 2 integrated results:professional caregivers and relative caregivers had multiple care burden,and need multiple care support;professional caregivers and relative caregivers can shoulder the care responsibility of children together,actively respond to the difficulties in care,gain personal care experience and growth.ConclusionsHospice care for minors has its own characteristics,and caregivers have various care burdens and needs.Special attention should be paid to the emotional experience and care demands of caregivers,and targeted support and protection should be provided to promote the construction of hospice care team for minors in China and improve the level of hospice care for minors in China.

关 键 词：定性研究 未成年人 安宁疗护 体验 Meta整合 

分 类 号：R48[医药卫生—临床医学]