子宫内膜异位症患者长期管理认知及接受情况调查  

Condition survey of cognition and acceptance of long-term management in patients with endometriosis

作　　者：刘瑞雪 王子衿 赵瑞华[1] 廖星[2] 彭超[3] 金华[4] 武颖[5] 孙伟伟[1] LIU Ruixue;WANG Zijin;ZHAO Ruihua;LIAO Xing;PENG Chao;JIN Hua;WU Ying;SUN Weiwei(Department of Gynaecology,Guang’anmen Hospital,China Academy of Chinese Medical Science,Beijing100053,China;Center for Evidence Based Chinese Medicine,Institute of Basic Research in Clinical Medicine,China Academy of Chinese Medical Sciences,Beijing100700,China;Department of Gynaecology,Peking University First Hospital,Beijing100034,China;Department of Gynaecology,Beijing Friendship Hospital,Capital Medical University,Beijing100050,China;Department of Acupuncture,Beijing Obstetrics and Gynecology Hospital,Capital Medical University,Beijing100010,China)

机构地区：[1]中国中医科学院广安门医院妇科,北京100053 [2]中国中医科学院中医临床基础医学研究所循证医学基础研究室,北京100700 [3]北京大学第一医院妇科,北京100034 [4]首都医科大学附属北京友谊医院妇科,北京100050 [5]首都医科大学附属北京妇产医院针灸科,北京100010

出　　处：《中国医药导报》2024年第30期92-96,114,共6页China Medical Herald

基　　金：首都卫生发展科研专项项目(首发2022-1-4152);中国中医科学院创新工程项目(CI2021A02401)。

摘　　要：目的调查子宫内膜异位症(EM)患者对长期管理的认知及接受情况,为构建、实施科学有效的EM长期管理方案,提高EM长期管理接受度和依从性提供依据。方法采用自制调查问卷对2023年5月至2024年1月就诊于中国中医科学院广安门医院、北京大学第一医院、首都医科大学附属北京妇产医院、首都医科大学附属北京友谊医院的EM患者进行调查,收集EM患者长期管理认知情况、接受情况。结果纳入的252例EM患者长期管理了解程度总分为(16.02±3.85)分;患者了解长期管理的途径主要是医务人员;EM患者对长期管理的疗效期望值较高,评分为(8.45±1.27)分;情绪管理是最重要的管理方式。247例(98.01%)EM患者有接受长期管理的意愿,最主要的原因是“我相信长期管理对治疗我的疾病有帮助”。168例(66.67%)患者既往接受过EM长期管理,“减灭和消除病灶”是最主要的管理目的,采取最多的管理方式是“药物管理”;未曾接受过EM长期管理最主要的原因为“我从未听说过子宫内膜异位症长期管理”。结论EM患者对长期管理的整体认知度偏低,但对长期管理的接受意愿较高。医务人员和医疗机构需要加强EM长期管理的科普宣传,同时要综合患者病情及治疗需求,结合药物、生活方式、饮食、运动、情绪等因素,基于循证证据及中医“治未病”思想制订管理方案,提高并满足患者对管理疗效的期待,提升EM长期管理在临床的推广、应用。Objective To investigate the cognition and acceptance of long-term management in patients with endometriosis(EM),and to provide evidence for constructing and implementing a scientific and effective EM long-term management scheme and improving the acceptance and compliance of EM long-term management.Methods A self-designed questionnaire was used to investigate EM patients admitted to Guang’anmen Hospital,China Academy of Chinese Medical Science,Peking University First Hospital,Beijing Obstetrics and Gynecology Hospital,Capital Medical University,and Beijing Friendship Hospital,Capital Medical University from May 2023 to January 2024.The long-term management of EM patients’cognition and acceptance were collected.Results The total score of long-term management recognition of 252 EM patients was(16.02±3.85)points;patients understand long-term management mainly through medical staff;the expected out-come of long-term management in EM patients was high,the score of(8.45±1.27)points;and emotion management was the most important form of management.A total of 247 cases(98.01%)EM patients were willing to accept long-term management,and the main reason was“I believe long-term management will be helpful in treating my disease”.A total of 168 cases(66.67%)patients had previously received long-term EM management,“reducing and eliminating lesions”was the main management purpose,and the most common management method was“drug management”;and the main reason for not receiving long-term management of EM was“I have never heard of long-term management of endometriosis”.Conclusion The awareness of long-term management among EM patients is low,but their willingness to accept long-term management is high.Medical personnel and medical institutions need to strengthen the popularization of EM long-term management,and at the same time,it is necessary to integrate the patient’s condition and treatment needs,combined with drugs,lifestyle,diet,exercise,emotions,and other factors,and formulate a management plan based on

关 键 词：子宫内膜异位症 长期管理 认知度 接受度 

分 类 号：R711.71[医药卫生—妇产科学]