PROMIS在成人造口患者随访管理中的应用价值研究进展  

Research progress on the application value of PROMIS in the follow-up management of ostomy patients

作　　者：肖曼玉 陶继华 杨明莹[3] 刘玉芹 李丹娜[3] 王娅 XIAO Manyu;TAO Jihua;YANG Mingying;LIU Yuqin;LI Danna;WANG Ya(Department of Nursing,Chenggong Hospital of Kunming Yan'an Hospital&Chenggong Hospital of Kunming Yan'an Affiliated Hospital of Kunming Medical University,Kunming 650500,Yunnan,China;Department of Nursing,Baoshan Peoples Hospital,Baoshan 678000,Yunnan,China;Department of Nursing,the 2nd Affiliated Hospital of Kunming Medical University,Kunming 650101,Yunnan,China)

机构地区：[1]昆明市延安医院呈贡医院,昆明医科大学附属延安医院呈贡医院护理部,云南昆明650500 [2]保山市人民医院护理部,云南保山678000 [3]昆明医科大学第二附属医院护理部,云南昆明650101

出　　处：《护士进修杂志》2024年第24期2657-2662,共6页Journal of Nurses Training

基　　金：云南省卫生和计划生育委员会医学领军人才培养计划基金资助项目(编号:L-2019008)。

摘　　要：大数据时代,患者的管理逐渐转变为理论驱动与数据驱动相结合,实时监测患者动态变化的健康结局数据。患者报告结局电子化实施路径内容无需他人解释,为解决患者随访管理中的信息延续问题提供了新思路,其对实现患者持久、动态、实时的健康状态监测发挥巨大优势,在造口患者的延续性管理中具有实用性。本文就患者报告结局测量信息系统(patient-reported outcomes measurement information system,PROMIS)和随访管理的概念、造口相关PROMIS评估工具、数据采集方式、应用价值进行综述,以期为我国开展造口患者随访管理提供参考借鉴。In the era of big data,patient management is gradually shifting towards a combination of theory-driven and data-driven approaches,with real-time monitoring of patients'dynamic health outcome data.The implementation of electronic patient-reported outcomes(ePROs)does not need to be explained by others,which provides a new perspective to solve the continuity of information in patient follow-up management,and it plays a significant advantage in achieving persistent,dynamic,and real-time health status monitoring.It is practical in the continuity management of ostomy patients.This review distracted the concepts of the patient-reported outcomes measurement information system(PROMIS)and follow-up management,ostomy-related PROMIS assessment tools,data collection methods,and application value,in order to provide reference for the follow-up management of ostomy patients in our country.

关 键 词：患者报告结局测量信息系统 造口 随访 电子健康档案 综述 护理 

分 类 号：R473.6[医药卫生—护理学]