帕金森病病人家庭抗逆力现状及影响因素  

Status quo and influencing factors of family resilience in patients with Parkinson's disease

作　　者：张晓晴 王巧红 李琳波[1] 杨辉[1,2] 田玉玲 杨二明 ZHANG Xiaoqing;WANG Qiaohong;LI Linbo;YANG Hui;TIAN Yuling;YANG Erming(Nursing College of Shanxi Medical University,Shanxi 030001 China;First Hospital of Shanxi Medical University)

机构地区：[1]山西医科大学护理学院,山西030001 [2]山西医科大学第一医院

出　　处：《护理研究》2024年第24期4349-4358,共10页Chinese Nursing Research

基　　金：中华护理学会青年项目,编号:ZHKYQ202203。

摘　　要：目的:调查帕金森病病人家庭抗逆力现状,明确其影响因素和作用路径,为帕金森病病人家庭抗逆力的干预研究提供参考。方法:选取2023年4月-9月在我院神经内科门诊就诊及住院治疗的帕金森病病人及主要照顾者291对作为调查对象,采用一般资料调查表、家庭坚韧性量表、家庭关怀度指数测评量表、帕金森病病人自我管理效能问卷、帕金森病照顾者负担量表和社会支持量表进行调查。结果:帕金森病病人家庭抗逆力得分为(54.93±5.81)分。线性回归分析结果显示,病人病程和家庭月均收入、照顾者文化程度和工作状态,以及病人的家庭功能、照顾者负担、社会支持是帕金森病病人家庭抗逆力的主要影响因素(P<0.05)。Bootstrap分析显示,社会支持在家庭功能和家庭抗逆力间起部分中介作用,效应值为0.302,占总效应的48.63%;照顾者负担在家庭功能和家庭抗逆力间起部分中介作用,效应值为0.112,占总效应的18.04%。结论:帕金森病病人家庭抗逆力处于中等水平,医护人员应该积极提升病人的家庭功能,关注和缓解照顾者的身心负担,及时评估和加强病人的社会支持情况,为不同背景的家庭提供个性化的干预指导,进而提高帕金森病病人的家庭抗逆力水平。Objective:To investigate the status quo of family resilience of patients with Parkinson's disease,to clarify its influencing factors and action path,and to provide reference for the intervention research of family resilience of patients with Parkinson's disease.Methods:A total of 291 pairs of Parkinson's disease patients and their main caregivers who received outpatient and inpatient treatment in the department of neurology of our hospital from April to September 2023 were selected as the investigation objects.A study was conducted by using the general data questionnaire,Family Hardiness Index(FHI),Family Adaptation,Partnership,Growth,Affection,Resolve(APGAR),Self⁃Management Efficacy Questionnaire for Patients with Parkinson's Disease,Parkinson's disease Caregiver Burden Questionnaire(PDCB)and Social Support Rating Scale(SSRS).Results:The family resilience score of patients with Parkinson's disease was 54.93±5.81.The results of linear regression analysis showed that the duration of disease,the average monthly income of the family,the education level and working status of the caregiver,the family function of the patient,the caregiver's burden and social support were the main influencing factors of family resilience in patients with Parkinson's disease(P<0.05).Bootstrap analysis showed that social support played a partial mediating role between family function and family resilience,with an effect value of 0.302,accounting for 48.63%of the total effect.Caregiver burden played a partial mediating role between family function and family resilience,with an effect value of 0.112,accounting for 18.04%of the total effect.Conclusions:The family resilience of patients with Parkinson's disease is at a medium level.Medical staff should actively improve the family function of patients,pay attention to and alleviate the physical and mental burden of caregivers,timely evaluate and strengthen the social support of patients,and provide personalized intervention guidance for families with different backgrounds,so as to improve t

关 键 词：帕金森病 家庭抗逆力 家庭功能 社会支持 照顾者负担 影响因素 

分 类 号：R473.74[医药卫生—护理学]