神经重症患者家属照护适应体验的质性研究  

Qualitative study on care adaptation experiences of family caregivers of patients with neurological critical illness

作　　者：魏利 赵兴颖 刘佳 何雨璇 陈晓梅 鲜继淑 杨燕妮[1] Wei Li;Zhao Xingying;Liu Jia;He Yuxuan;Chen Xiaomei;Xian Jishu;Yang Yanni(Teaching Office of Nursing Fundamentals,Faculty of Nursing,Army Medical University(Third Military Medical University),Chongqing 400038,China)

机构地区：[1]陆军军医大学(第三军医大学)护理系基础护理学教研室,重庆400038 [2]陆军军医大学第一附属医院神经外科

出　　处：《护理学杂志》2024年第24期57-60,68,共5页Journal of Nursing Science

基　　金：国家社会科学基金项目(20BRK039)。

摘　　要：目的 探讨神经重症患者家属的照护适应体验,为促进家庭支持提供参考。方法 采用现象学研究方法,对17名神经重症住院患者的家属进行半结构化深入访谈,使用Colaizzi 7步法对访谈数据进行分析。结果 共提炼4个主题和12个副主题,包括适应的威胁和挑战(严重的身体负荷、沉重的精神压力、突然改变的生活、支持系统不足)、适应的正性体验(精神成长、共同成长)、适应困境的应对策略(自我逃避与调整、寻求支持与帮助)、适应需求(加强过渡期护理、希望专业支持、得到尊重与鼓励、渴望心理支持)。结论 神经重症患者家属照护适应体验复杂,医护人员应为其提供支持和帮助,以应对预期的照护困难。Objective To explore the care adaptation experiences of family caregivers of patients with neurological critical illness,providing reference for promoting family support.Methods A phenomenological research method was used to conduct semi-structured in-depth interviews with 17 family caregivers of patients hospitalized for neurological critical illness.Colaizzi′s seven-step method was applied to analyze the interview data.Results Four themes and twelve sub-themes were identified,including threats and challenges to adaptation(severe physical burden,heavy mental stress,sudden lifestyle changes,inadequate support systems),positive adaptation experiences(personal growth,mutual growth),coping strategies for adaptation difficulties(self-avoidance and adjustment,seeking support and help),and adaptation needs(enhanced transitional care,desire for professional support,need for respect and encouragement,longing for psychological support).Conclusion The care adaptation experiences of family caregivers of patients with neurological critical illness are complex.Healthcare professionals should provide support and assistance to family caregivers to help them cope with anticipated caregiving difficulties.

关 键 词：神经重症 家属 照护 照护体验 照护困难 适应 家庭支持 质性研究 

分 类 号：R473.74[医药卫生—护理学]