寓理于情:罕见病群体议题的垂直生产和边界外延——基于社会支持理论的视角  

Integrating Reason with Emotion:The Vertical Production and Boundary Extension of Issues on Rare Disease Groups——Based on the Perspective of Social Support Theory

作　　者：张淑宁 解学芳[2] Zhang Shuning;Xie Xuefang

机构地区：[1]同济大学艺术与传媒学院 [2]同济大学人文学院

出　　处：《社会福利》2024年第10期11-26,共16页Social Welfare

摘　　要：新媒介的迅速发展加速了网络议程设置的发展,一系列的媒体议程网络逐渐影响社会公众对罕见病群体的认知和态度。研究发现,媒体关键词网络与公众关键词网络相关性系数为0.27,在一定程度上具有显著的相关性。媒体在报道罕见病群体时呈现出社会支持话语“垂直化”的生产特征:基于罕见病普及的框架凸显、深度信息传播下的“他者”在场,情绪卷入的积极叙事。此外,在社会支持体系结构方面,公众议程关键词网络分化出与媒体议程关键词网络差异化的话语逻辑,与媒体议程关键词网络存在边界断裂和外延的关系。The rapid development of new media has accelerated the evolution of the online agenda setting,with a series of media agenda networks gradually shaping the public's perceptions and attitudes towards rare disease groups.The study reveals a correlation coefficient of 0.27 between the media keyword network and public keyword network,indicating a notable correlation to some extent.When reporting on rare disease groups,the media presents the production characteristics of"vertical"social support discourse:highlighting a framework based on the popularization of rare diseases,the presence of"others"under deep information transmission,and an emotionally engaging positive narrative.In addition,in terms of the structure of the social support system,the public agenda keyword network has differentiated discourse logic from the media agenda keyword network,exhibiting a boundary break and extension relationship with the latter.

关 键 词：罕见病群体 社会支持 媒体网络议程 公众网络议程 议程设置 

分 类 号：G21[文化科学—新闻学]