基于多模态数据的宫颈癌专病库建设  

Construction of cervical cancer disease database based on multimodal data

作　　者：王琳琳[1] 郝文杰 郝鹏鹏 崔芳芳 何贤英[1] WANG Linlin;HAO Wenjie;HAO Pengpeng;CUI Fangfang;HE Xianying(National Engineering Laboratory of Internet Medical System and Application,the First Affiliated Hospital of Zhengzhou University,Zhengzhou 450052,Henan Province,China)

机构地区：[1]郑州大学第一附属医院互联网医疗系统与应用国家工程实验室,郑州450052

出　　处：《中国数字医学》2025年第1期77-81,共5页China Digital Medicine

基　　金：河南省科技攻关项目(232102311057、242102311012);河南省高等学校重点科研项目(23A330007)。

摘　　要：目的:更好地利用真实世界的宫颈癌诊疗数据,提高宫颈癌的防控和诊疗水平。方法:采用大数据技术框架,基于对业务、数据等流程的分析,汇聚郑州大学第一附属医院宫颈癌患者数据,通过数据治理、专病库系统设计等,构建多模态宫颈癌专病库。结果:基于12个临床信息系统,构建了涵盖64个数据模型、2393个字段的多模态宫颈癌专病库,纳入2.2万余例患者、30.9万余人次的就诊信息,并开发了涵盖数据画像、患者全景、研究项目、数据分析、随访中心、辅助诊疗、知识库、专病库管理等8大功能模块的专病库管理系统。结论:该专病库实现了同一患者跨系统信息的关联整合,并为宫颈癌临床研究提供了多模态、标准化、可便捷获取的高质量数据。Objective In order to make better use of the real-world data of cervical cancer diagnosis and treatment,and improve the level of cervical cancer prevention,control,diagnosis and treatment.Methods Using the big data technology framework,based on the analysis of business,data and other process,the data of cervical cancer patients in the First Affiliated Hospital of Zhengzhou University was gathered,and a multimodal cervical cancer specialized database was constructed through data governance and system design of the database.Results Based on 12 clinical information systems,a multimodal cervical cancer specialized database covering 64 data models and 2,393 fields was constructed,including more than 22,000 patients and 309,000 visits.A special disease database management system covering 8 functional modules was developed,including data portrait,patient panorama,research project,data analysis,follow-up center,auxiliary diagnosis and treatment,knowledge base,and special disease database management.Conclusion Through this disease-specific database,the cross-system information of the same patient can be associated and integrated,and multi-modal,standardized,convenient and high-quality data can be obtained for clinical research of cervical cancer.

关 键 词：专病库 宫颈癌 多模态数据 数据治理 

分 类 号：R197.3[医药卫生—卫生事业管理] R319[医药卫生—公共卫生与预防医学]