发热感染相关性癫痫综合征患儿的急救护理  

Emergency nursing care of a child with febrile infection-related epilepsy syndrome

作　　者：夏姗姗[1] 丁亚平 沈震 高建娣[2] XIA Shanshan;DING Yaping;SHEN Zhen;GAO Jiandi

机构地区：[1]国家儿童健康与疾病临床医学研究中心/浙江大学医学院附属儿童医院儿童重症监护病房,杭州市310052 [2]国家儿童健康与疾病临床医学研究中心/浙江大学医学院附属儿童医院护理部,杭州市310052

出　　处：《中华急危重症护理杂志》2025年第1期76-78,共3页Chinese Journal of Emergency and Critical Care Nursing

摘　　要：总结1例发热感染相关性癫痫综合征患儿的急救护理体会。针对病情进展快且难以控制、丙泊酚输注综合征病死率高等护理难点,采取最佳呼吸支持方式改善通气;动态调整麻醉剂、规范应用生物制剂及早期启动生酮饮食控制急性期癫痫发作;应用体外膜肺氧合技术、血浆置换等措施维持脏器功能稳定,纠正丙泊酚输注综合征。经过35 d的精心治疗及护理,患儿病情稳定,渡过急性期。To summarize the emergency nursing experience for a child with febrile infection-related epilepsy syndrome(FIRES).Due to the rapid and difficult-to-control progression in FIRES,and the high mortality rate associated with propofol infusion syndrome,optimal respiratory support was implemented to improve ventilation,dynamic adjustments of anesthetics were made,biologics used according to protocols,and early initiation of a ketogenic diet was employed to control acute seizures,measures such as extracorporeal membrane oxygenation(ECMO)and plasma exchange were utilized to maintain stable organ function,propofol infusion syndrome was cor-rected.After 35 days of meticulous treatment and care,the patient’s condition stabilized,overcoming the acute phase.

关 键 词：发热感染相关性癫痫综合征 丙泊酚输注综合征 儿童 急救护理 

分 类 号：R473.72[医药卫生—护理学]