系统性红斑狼疮患者的病耻感、心理弹性状况及相关因素  

Study on stigma,resilience and related factors of systemic lupus erythematosus

作　　者：曹逸[1] 支朝新 杜文婷[2] CAO Yi;ZHI Chaoxin;DU Wenting(Department of Rheumatology and Immunology,First Affiliated Hospital of Zhengzhou University,Zhengzhou 450000,China;Department of Cardiovascular Medicine,First Affiliated Hospital of Zhengzhou University)

机构地区：[1]郑州大学第一附属医院风湿免疫科,450000 [2]郑州大学第一附属医院心血管内科

出　　处：《中国健康心理学杂志》2025年第3期378-382,共5页China Journal of Health Psychology

基　　金：河南省科技厅科技攻关项目(编号:242102310282)。

摘　　要：目的:研究系统性红斑狼疮(SLE)患者的病耻感,心理弹性状况及相关因素。方法:选取2023年2月至2024年4月在某三甲医院接受治疗的244例SLE患者作为研究对象,通过慢性病病耻感量表(SSCI)及心理弹性问卷分析SLE患者病耻感及心理弹性状况,比较SLE患者SSCI评分及心理弹性评分,采用多元线性回归分析法分析影响患者病耻感与心理弹性的相关因素。结果:不同性别、年龄、文化程度、婚姻状况、有无子女、家庭年均收入、疼痛程度、住院次数患者的SSCI评分比较有差异(t/F=-5.389,10.759,7.222,-3.209,-2.684,4.406,7.397,-3.472;P<0.05)。不同性别、年龄、文化程度、婚姻状况、家庭年均收入、有无子女、疼痛程度、住院次数患者的心理弹性评分比较有差异(t/F=2.673,5.284,9.033,2.540,-2.865,2.076,6.881,3.466;P<0.05)。多元线性回归分析结果显示,性别、文化程度、婚姻状况、家庭年均收入、疼痛程度、住院次数均是SLE患者病耻感性的影响因素(P<0.05),文化程度、婚姻状况、疼痛程度、住院次数是SLE患者心理弹性的影响因素(P<0.05)。SLE患者SSCI评分与心理弹性评分呈负相关(r=-0.649,P<0.05)。结论:SLE患者病耻感及心理弹性受到多个因素的影响,临床应对此类因素进行针对性管理,以缓解患者病耻感,提高心理弹性水平。Objective:To study the stigma,resilience and related factors of patients with systemic lupus erythematosus(SLE).Methods:A total of 244 SLE patients treated at three hospitals between February 2023 and April 2024 were selected as study subjects,the stigma and resilience of SLE patients were analyzed by SSCI and resilience questionnaire,the SSCI scores and resilience scores of SLE patients with different clinical characteristics were compared,the multiple linear regression was used to analyze the related factors affecting the stigma and resilience of SLE patients.Results:SSCI scores of patients with different gender,age,education level,marital status,children or not,average annual family income,pain degree and hospitalization times were different(t/F=-5.389,10.759,7.222,-3.209,-2.684,4.406,7.397,-3.472;P<0.05).The scores of patients with different gender,age,education level,marital status,children or not,average annual family income,pain degree and hospitalization times were different(t/F=2.673,5.284,9.033,2.540,-2.865,2.076,6.881,3.466;P<0.05).The results of multiple linear regression analysis showed that gender,education level,marital status,annual family income,pain level,and hospitalization frequency were all influencing factors of SLE patients'sense of shame(P<0.05),while education level,marital status,pain level,and hospitalization frequency were all influencing factors of SLE patients'psychological resilience(P<0.05).SSCI score of SLE patients was negatively correlated with resilience score(r=-0.649,P<0.05).Conclusion:The stigma and resilience of SLE patients are influenced by many factors,and clinical management should be targeted at these factors to alleviate the stigma and increase the level of resilience.

关 键 词：系统性红斑狼疮 病耻感 心理弹性 人口学因素 

分 类 号：R395.6[哲学宗教—心理学]