慢性心力衰竭患者及其照护者疾病二元应对体验的质性研究  

Qualitative study on binary coping experience of patients with chronic heart failure and their caregivers

作　　者：李佳雪 马超 张超[3] 王楠[3] 李姗 LI Jiaxue;MA Chao;ZHANG Chao;WANG Nan;LI Shan(School of Nursing,Xinjiang Second Medical College,Karamay 834000;School of Nursing,Xinjiang Medical University,Urumqi 830000;Cardiovascular Medical Intensive Care Unit,Karamay Central Hospital of Xinjiang,Karamay 834000,China)

机构地区：[1]新疆第二医学院护理学院,新疆克拉玛依834000 [2]新疆医科大学护理学院,新疆乌鲁木齐830000 [3]新疆克拉玛依市中心医院心血管内科监护室,新疆克拉玛依834000

出　　处：《临床医学研究与实践》2025年第6期5-8,共4页Clinical Research and Practice

基　　金：克拉玛依市创新环境建设计划(创新人才)基金资助项目(No.2022hjcxrc0046)。

摘　　要：目的 探讨慢性心力衰竭(CHF)患者及其照护者的疾病应对体验,以为其提供针对性干预措施。方法采用目的抽样法,选取2023年4月至6月新疆克拉玛依市某三甲医院CHF患者(24例)以及其主要照护者(24人)为研究对象,依据健康行为改变整合理论拟定患病和照护体验提纲,并进行半结构式访谈,采用Colaizzi 7步法对访谈资料进行整理分析。结果 共提炼出CHF患者及照护者生活负担沉重(患者的症状体验、照护者负担沉重)、CHF患者和照护者的负性情绪体验(患者的消极心理、照护者心理负担过重)、CHF疾病知识缺乏(患者症状管理知识缺乏、照护者知识和能力不足)3个主题,6个亚主题。结论 CHF患者及照护者负担沉重、情绪消极、知识与能力不足。医护人员应密切关注,将其作为整体进行二元干预以改善现状。Objective To explore the disease coping experience of patients with chronic heart failure(CHF)and their caregivers,and to provide targeted intervention measures.Methods The purpose sampling method was used to select CHF patients(24 cases)and their main caregivers(24 people)from a top three hospital in Karamay,Xinjiang from April to June 2023 as the research objects.According to the integrated theory of health behavior change,the outline of illness and care experience was drawn up,and semi-structured interviews were conducted.The interview data were analyzed by Colaizzi 7-step method.Results A total of 3 themes and 6 sub-themes were extracted,including the heavy burden of life of CHF patients and caregivers(the patient's symptom experience,the caregiver's heavy burden),the negative emotional experience of CHF patients and caregivers(the patient's negative psychology,the caregiver's psychological burden),and the lack of knowledge of CHF disease(the patient's symptom management knowledge lack,the caregiver's insufficient knowledge and ability lack).Conclusion CHF patients and caregivers have heavy burdens,negative emotions,and insufficient knowledge and ability.Medical staff should pay close attention to it as a whole to carry out binary intervention to improve the status quo.

关 键 词：慢性心力衰竭 二元应对 患病体验 照护体验 

分 类 号：R473[医药卫生—护理学]