基于在线医疗问诊记录的慢性肾脏病患者健康信息需求分析  

Analysis of health information needs of patients with chronic kidney disease based on online medical consultation records

作　　者：黎敏仪 申红霞 严斯静 Rianne van der Kleij Cynthia Hallensleben Niels Chavannes Li Minyi;Shen Hongxia;Yan Sijing;Rianne van der Kleij;Cynthia Hallensleben;Niels Chavannes(School of Nursing of Guangzhou Medical University,Guangzhou 510180,China;Leiden University Medical Center,Leiden 2300RC,Netherland;World eHealth Living Lab in the Netherlands,Leiden 2300RC,Netherland)

机构地区：[1]广州医科大学护理学院,广州510180 [2]莱顿大学医学中心,莱顿2300RC [3]荷兰全球电子健康工程实验室,莱顿2300RC

出　　处：《中国实用护理杂志》2025年第8期561-569,共9页Chinese Journal of Practical Nursing

基　　金：国家自然科学基金(72204060);广东省基础与应用基础研究基金联合基金(2022A1515110351)。

摘　　要：目的基于在线医疗问诊平台的问诊记录,分析用户的慢性肾脏病健康信息需求,为开展个性化慢性肾脏病健康信息服务管理和干预提供决策依据。方法2022年9月15日至12月30日,采用手工检索与网络爬虫相结合的方式,获取好大夫在线、丁香医生及春雨医生三大在线问诊平台中“肾脏病”话题的提问记录,依据用户的提问实际内容归类热点提问记录,通过分词、词频-逆文档频率算法计算排名前50位的高频关键词,使用Gephi软件对关键词的共现矩阵进行可视化分析。结果获取的提问内容中包含78405条有效问诊记录。归类结果显示,用户的慢性肾脏病健康信息需求可归为5大类:基本知识(病因与危险因素、症状与体征、诊断的分类与分级、并发症或合并症、药物效果与不良反应)、治疗方案、社会生活影响(躯体影响、家庭影响、社会交往影响、经济负担影响、工作影响)、自我管理(自我照护或居家照护、应急突发事件)及社会支持(家庭支持、专业医疗团队支持)。结论基于在线医疗问诊平台的慢性肾脏病健康信息需求呈现内容广泛性与主体多样化,提示针对不同主体提供慢性肾脏病健康信息服务时,应制订针对性、个性化的健康信息指导。Objective Based on the consulation records of the online medical consulation platform,the chronic kidney disease(CKD)health information needs of users are analyzed,so as to provide a decision-making basis for the development of personalized CKD health information services,management and intervention.Methods From September 15th to December 30th,2022,the combination of manual retrieval and web crawler was used to obtain the question records of"kidney disease"in the three online medical platforms including Good Doctor Online,Dingxiang Doctor and Chunyu Doctor.Also,the hot question records were casified according to the content of users'questions.The top 50 high-frequency keywords were calculated by word segmenlation and term frequeney-inverse document frequency(IF-IDF)algorithm.The Gephi software was used to visualize the co-ocurrence matrix of keywords.Results A total of 78405 valid consultation records were collected in the obtained question content.The classification results showed that the users'CKD health information needs can be classifed into five categories,including basic knowledge(etiology and risk factors,symptoms and signs,classification and grading of diagnosis,complications or comorbidities,drug ffects and adverse reactions),treatment plan,social life impact(physical impact,family impact,social interaction impact,economic burden impact,work impact),self-management(self-care or home care,emergency response)and social support(family support,professional medical team support).Conclusions The information demand for CKD based on the online medical consultation platform presents a wide range of content and diversifed subjects.This suggests that targeted and personalized health information guidance should be formulated when providing CKD health information services for dfferent subjecs.

关 键 词：慢性肾脏病 在线医疗 健康信息需求 

分 类 号：TP3[自动化与计算机技术—计算机科学与技术]