远程医疗运动在先天性心脏病患儿居家心脏康复中的应用  

Application of telemedicine-based exercise intervention in home cardiac rehabilitation for children with congenital heart disease

作　　者：乐琼 陶晶 兰红 汪红萍 吴丽芬 彭华 Le Qiong;Tao Jing;Lan Hong;Wang Hongping;Wu Lifen;Peng Hua(Department of Pediatrics,Union Hospital,Tongji Medical College,Huazhong University of Science and Technology,Wuhan 430022,China)

机构地区：[1]华中科技大学同济医学院附属协和医院儿科,湖北武汉430022 [2]华中科技大学同济医学院附属协和医院护理部,湖北武汉430022

出　　处：《护理学杂志》2025年第6期10-14,共5页Journal of Nursing Science

基　　金：华中科技大学同济医学院附属协和医院药技护项目(2024XHYN088)。

摘　　要：目的 探讨远程医疗运动在先天性心脏病患儿居家心脏康复中的应用效果。方法 将96例学龄期先天性心脏病患儿按照住院时间分为对照组(46例)和观察组(50例)。对照组实施常规居家运动康复护理;观察组实施远程医疗运动干预,构建远程医疗运动康复云平台,根据患儿运动能力制订个性化运动计划,开设在线运动课堂指导患儿运动,实时进行运动监测。干预12周比较两组患儿6 min步行试验距离、运动计划执行率、生存质量及满意度评分。结果 干预12周,观察组6 min步行试验距离、总运动计划执行率、生存质量评分及满意度显著高于对照组(均P<0.05)。结论 远程医疗运动将远程医疗与运动干预相结合,有助于提高先天性心脏病患儿运动耐力和依从性,有效改善患儿生存质量。Objective To explore the effectiveness of telemedicine-based exercise intervention in home cardiac rehabilitation for children with congenital heart disease.Methods A total of 96 school-age children with congenital heart disease were assigned to one of two groups chronologically.The control group(n=46) received routine home-based exercise training,while their counterparts in the experimental group(n=50) were subjected to telemedicine-based exercise intervention.A telemedicine exercise rehabilitation platform was constructed,individualized exercise protocol was formulated based on the child′s exercise capability,online exercise classes were provided to guide the exercise training,and real-time monitoring of the exercise was achieved.After 12 weeks of intervention,the 6-minute walk distance,exercise protocol adherence,quality of life,and satisfaction were compared between the two groups.Results After 12 weeks of the intervention,the above-mentioned parameters in the experimental group were significantly better compared to the control group(all P<0.05).Conclusion Telemedicine-based exercise,which combines telemedicine and exercise intervention,helps children with congenital heart disease improve exercise endurance and adherence,as well as enhances their quality of life.

关 键 词：先天性心脏病 患儿 远程医疗 运动干预 生存质量 心脏康复 康复训练 延续护理 

分 类 号：R473.72[医药卫生—护理学]