网络自助正念自悯干预对癌症患儿父母疾病进展恐惧的影响  

Impact of Internet-based self-help mindful self-compassion intervention on fear of progression in parents of children with cancer

作　　者：朱文婷 杨祎玲 史蕾[1] 梁丽婵[3] 魏天琪 刘炜菲 Zhu Wenting;Yang Yiling;Shi Lei;Liang Lichan;Wei Tianqi;Liu Weifei(School of Nursing,Southern Medical University,Guangzhou 510515,China)

机构地区：[1]南方医科大学护理学院,广东广州510515 [2]深圳市人民医院肿瘤内科 [3]南方医科大学珠江医院儿科中心小儿血液科

出　　处：《护理学杂志》2025年第6期71-76,共6页Journal of Nursing Science

基　　金：深圳市“医疗卫生三名工程”基金项目(SZZYSM202108013)。

摘　　要：目的 探究网络自助正念自悯干预提升癌症患儿父母自悯水平、改善疾病进展恐惧的效果。方法 招募癌症患儿父母72人,将其随机分为对照组与试验组各36人。对照组接受常规医疗护理;试验组在常规医疗护理的基础上接受网络自助式正念自悯干预。干预前及干预8周后采用自悯量表、父母疾病进展恐惧量表进行测评。结果 干预后,试验组自悯量表评分显著高于对照组,父母疾病进展恐惧量表总分及情感反应、家庭生活维度得分显著低于对照组(均P<0.05)。结论 网络自助式正念自悯干预能提高癌症患儿父母的自悯水平,改善疾病进展恐惧。Objective To explore the effects of Internet-based self-help mindful self-compassion intervention on self-compassion and fear of progression in parents of children with cancer.Methods A total of 72 parents of children with cancer were recruited and randomly allocated into either a study or a control group,with 36 in each group.The control group received routine medical treatment and nursing care,while their counterparts in the study group received Internet-based self-help mindful self-compassion intervention for eight weeks.The Self-compassion Scale and the Fear of Progression Questionnaire-parent version were used to measure the effect at baseline and post-intervention.Results After the intervention,the total self-compassion score was significantly higher,whereas the total fear of progression score and dimension scores of affective reactions and family life were significantly lower in the study group compared to the control group(all P< 0.05).Conclusion The Internet-based self-help mindful self-compassion intervention can enhance self-compassion level and ameliorate fear of progression in parents of children with cancer.

关 键 词：儿童 癌症 父母 疾病进展恐惧 正念 自悯 心理护理 随机对照试验 

分 类 号：R473.73[医药卫生—护理学]