青少年特发性脊柱侧凸患者照顾者心理痛苦体验的质性研究  

A qualitative study of psychological distress experiences of caregivers of adolescents with idiopathic scoliosis

作　　者：曾莉 王慧文 晏蓉 Zeng Li;Wang Huiwen;Yan Rong(Department of Orthopedics,Union Hospital,Tongji Medical College,Huazhong University of Science and Technology,Wuhan 430022,China)

机构地区：[1]华中科技大学同济医学院附属协和医院骨科,湖北武汉430030

出　　处：《护理学杂志》2025年第6期96-99,共4页Journal of Nursing Science

基　　金：湖北省自然科学基金一般面上项目(2023AFB1086);华中科技大学同济医学院附属协和医院院级教学改革项目(2020XH38)。

摘　　要：目的 了解青少年特发性脊柱侧凸患者照顾者心理痛苦的心理体验,为临床制订针对性心理干预方案提供参考。方法 采用描述性现象学研究方法,对31名青少年特发性脊柱侧凸患者照顾者进行深度半结构式访谈,通过Colaizzi七步分析法进行资料分析,提炼主题。结果 共提炼出6个主题:疾病不确定感、对患者身体外观的过度关注、对患者生活质量的担忧、对患者心理健康的担忧、家庭生活方式调整的压力、焦虑抑郁与希望交织。结论 青少年特发性脊柱侧凸患者照顾者存在多种心理痛苦,医护人员需制订可行的心理干预计划,以降低其心理痛苦水平。Objective To explore the psychological distress experiences of caregivers of adolescents with idiopathic scoliosis,and to provide a reference for targeted psychological intervention.Methods A descriptive phenomenological research method was employed.Semi-structured in-depth interviews were conducted with 31 caregivers of adolescents with idiopathic scoliosis.Data were analyzed using Colaizzi′s seven-step phenomenological approach.Results Six themes were identified:uncertainty of the disease,excessive concern about the patient′s physical appearance,worries about the patient′s quality of life,concerns about the patient′s mental health,pressure from lifestyle adjustment within the family,and a mix of anxiety,depression,and hope.Conclusion Caregivers of adolescents with idiopathic scoliosis experience various psychological distress.Healthcare professionals should develop practical psychological intervention strategies to alleviate caregivers′ distress level.

关 键 词：青少年 特发性脊柱侧凸 照顾者 心理痛苦 疾病不确定感 生活质量 质性研究 

分 类 号：R473.1[医药卫生—护理学]