妊娠合并抗磷脂综合征患者患病体验的质性研究  

Illness Experience of Pregnant Patients with Antiphospholipid Syndrome:A Qualitative Study

作　　者：黄娟 高伟[2] 饶琳[2] 陆佳 HUANG Juan;GAO Wei;RAO Lin;LU Jia(Department of Nursing and Home Economics,Shanghai Yangpu Spare-time University,Shanghai 200438,China;Department of Nursing,School of Medicine of International Peace Maternity and Child Health Hospital Affiliated with Shanghai Jiaotong University/Shanghai Key Laboratory of Embryo Original Diseases,Shanghai 200030,China)

机构地区：[1]上海市杨浦区业余大学护理与家政系,上海200438 [2]上海交通大学医学院附属国际和平妇幼保健院、上海市胚胎源性疾病重点实验室护理部,上海200030

出　　处：《军事护理》2025年第4期26-29,共4页MILITARY NURSING

基　　金：上海市卫生健康委员会卫生行业临床研究专项立项项目(202040232)。

摘　　要：目的了解妊娠合并抗磷脂综合征(antiphospholipid syndrome,APS)患者的疾病感受与体验,以期为临床护理干预提供参考。方法2023年1-3月,采用目的抽样法选取上海市某三级甲等妇幼保健院门诊就诊的妊娠合并APS的孕妇为研究对象。采用现象学研究法及Colaizzi 7步分析法进行访谈资料的分析。结果妊娠合并APS患者的疾病体验可归纳为3个主题:困难与挑战并存、预防复发性流产的应对方式以及自我成长。结论妊娠合并妊娠合并APS患者的情绪负担较大,但其采取积极的应对方式获得了心理成长,医护人员应给予更多支持,以降低不良妊娠结局的发生。Objective To explore the perception and experiences of pregnant women with antiphospholipid syndrome(APS)and provide reference to clinical nursing intervention.Methods Pregnant women with APS from an outpatient clinic at a tertiary A hospital in Shanghai were selected by purposive sampling from January to March 2023.Phenomenological qualitative research and the Colaizzi 7-steps analysis method were utilized to analyze the interview data.Results The illness experience of pregnant women with APS was synthesized into 3 themes:coexistence of difficulties and challenges,coping strategies to prevent recurrent spontaneous abortion,and self-growth.Conclusions Despite the heavy emotional burden,pregnant women with APS gain psychological growth with an active response in the treatment.Medical staff should give more support and psychological guidance to reduce the occurrence of adverse pregnancy outcomes.

关 键 词：妊娠抗磷脂综合征 症状体验 质性研究 

分 类 号：R473.71[医药卫生—护理学]