Data Spaces in Medicine and Health:Technologies,Applications,and Challenges  

医疗健康领域数据空间:技术、应用与挑战

作　　者：Wan-Fei Hu Si-Zhu Wu Qing Qian 胡万飞;吴思竹;钱庆(中国医学科学院北京协和医学院医学信息研究所/图书馆,北京100020)

机构地区：[1]Institute of Medical Information/Medical Library,Chinese Academy of Medical Sciences&Peking Union Medical College,Beijing 100020,China

出　　处：《Chinese Medical Sciences Journal》2025年第1期18-28,I0004,共12页中国医学科学杂志(英文版)

基　　金：中国医学科学院医学与健康科技创新工程项目(2021-I2M-1-057);癌症、心脑血管、呼吸和代谢性疾病防治研究国家科技重大专项(2023ZD0509702)。

摘　　要：Data space,as an innovative data management and sharing model,is emerging in the medical and health sectors.This study expounds on the conceptual connotation of data space and delineates its key technologies,including distributed data storage,standardization and interoperability of data sharing,data security and privacy protection,data analysis and mining,and data space assessment.By analyzing the real-world cases of data spaces within medicine and health,this study compares the similarities and differences across various dimensions such as purpose,architecture,data interoperability,and privacy protection.Meanwhile,data spaces in these fields are challenged by the limited computing resources,the complexities of data integration,and the need for optimized algorithms.Additionally,legal and ethical issues such as unclear data ownership,undefined usage rights,risks associated with privacy protection need to be addressed.The study notes organizational and management difficulties,calling for enhancements in governance framework,data sharing mechanisms,and value assessment systems.In the future,technological innovation,sound regulations,and optimized management will help the development of the medical and health data space.These developments will enable the secure and efficient utilization of data,propelling the medical industry into an era characterized by precision,intelligence,and personalization.数据空间作为一种创新的数据管理和共享模式,在医疗健康领域逐渐出现并应用。本综述阐述了数据空间概念内涵,描述其关键技术,包括数据分布式存储与共享、数据共享的标准化与互操作性、数据安全与隐私保护、数据分析挖掘及数据空间评估等技术以及各技术在医疗健康领域的应用进展。通过分析医疗健康领域数据空间的真实案例,本研究对比了这些数据空间在目的、架构、数据互操作性和隐私保护等维度的异同。医疗健康领域数据空间面临计算资源受限、数据整合复杂和算法优化需求的挑战;此外,法律伦理方面数据所有权不明、使用权界定不清和隐私保护存在风险等问题有待解决。本研究指出组织管理方面的困难,提出需要完善治理框架、共享机制和价值评估体系。展望未来,技术创新、法规健全及管理优化将助力医疗健康领域数据空间发展,实现数据安全高效利用,推动医疗行业迈向精准化、智能化、个性化的时代。

关 键 词：data space medical and health data data sharing privacy protection data security 

分 类 号：TP311.13[自动化与计算机技术—计算机软件与理论] TP3[自动化与计算机技术—计算机科学与技术]