协商无心性身体——脑深部电刺激前后帕金森患者的生活经验  

Negotiating Mindless Bodies:Life Experience of Parkinson's Disease Patient Before and After the DBS Treatment

作　　者：王程韡 戎毅杰 WANG Chengwei;RONG Yijie(Department for the History of Science and Scientific Archaeology,University of Science and Technology of China,Hefei,Anhui,230026;Center for Science,Technology and Society,Tsinghua University,Beijing,100084)

机构地区：[1]中国科学技术大学科技史与科技考古系,安徽合肥230026 [2]清华大学科学技术与社会研究中心,北京100084

出　　处：《自然辩证法通讯》2025年第4期57-65,共9页Journal of Dialectics of Nature

基　　金：中国科学技术大学引进人才科研启动专项项目(项目编号:KY2110000045)。

摘　　要：当代身体研究在身体是一个还是多个的问题上存在争议。帕金森(PD)作为一种神经退行性慢性疾病,通过避免心-身“同时说话”的方式,为观察无心性的(mindless),即不受心性干预的身体提供了窗口。依托参与式观察和深度访谈,研究发现无论是在脑深部电刺激术前决策还是术后心态调整的过程中,对家庭、工作等社会角色的期许都发挥了至关重要的关键作用。相比之下,情感性事件仅仅停留在帮助PD患者提振治疗信心的程度。患者能否选择“要活出哪一种生命?哪一副身体?”,也取决于医生能否重组出一个对患者更友好的社会情境,为其预留充分的能动性空间。Contemporary studies of the body are controversial on the issue of whether the body is one or multiple.Parkinson’s disease(PD),a chronic neurodegenerative disease,however,provides a window of opportunity to investigate the“mindless bodies”by avoiding mind-body“speaking simultaneously”.Through participant observation and in-depth interviews,this essay reveals that the expectations of social roles such as family and work play a critical role in preoperative decision-making,as well as in postoperative adjustment in the deep brain stimulation(DBS)treatment.In contrast,human events literally seething with emotion remain only to the extent of boosting their confidence for this treatment.Patients can only choose“which life to live,and which body?”where doctors reassemble a more patient-friendly social context for their agency.

关 键 词：脑深部电刺激 协商 无心性身体 社会角色 情感性事件 

分 类 号：N031[自然科学总论—科学技术哲学] K826.2[历史地理—历史学]