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作 者:姚臻帅 何平平 朱小芳[1] 王锦[1] 周莹[1] 伍一媛 徐筱 谭舒婷 YAO Zhenshuai;HE Pingping;ZHU Xiaofang;WANG Jin;ZHOU Ying;WU Yiyuan;XU Xiao;TAN Shuting(School of Nursing,Hunan Normal University,Changsha 410013,Hunan,China;Kiang Wu Nursing College of Maca,Macao,999078,China)
机构地区:[1]湖南师范大学护理学院,长沙410013 [2]澳门镜湖护理学院,中国澳门999078
出 处:《中国艾滋病性病》2025年第3期337-341,共5页Chinese Journal of Aids & STD
基 金:湖南省妇女理论与实践研究重点项目(21ZD803)。
摘 要:目的系统评价和整合艾滋病患者家庭照顾者的连带病耻感体验,为制定减轻照顾者连带病耻感护理干预方案提供依据。方法计算机检索PubMed、Embase、Web of science、Cochrane Library、中国知网、中国生物医学数据库、万方、维普等中英文数据库有关艾滋病患者家庭照顾者连带病耻感体验的质性研究,检索时限为建库至2024年10月。采用澳大利亚循证卫生保健中心推荐的质性研究质量评价标准对纳入文献进行质量评价,采用Meta整合方法对研究结果进行整合。结果共纳入10篇质性研究,提炼出29个主题,归纳形成7个新类别,综合成3个整合结果:连带病耻感的来源;连带病耻感对家庭照顾者的影响;应对连带病耻感的方式。结论连带病耻感给艾滋病患者家庭照顾者带来严重的负面影响,医护人员应重视照顾者连带病耻感现象,提供充足的社会和心理支持,制定符合照顾者需求的多层次联合干预方案,进而提升照顾者的生活质量。Objective To systematically evaluate and integrate qualitative research on affiliate stigma experiences among family caregivers of patients living with AIDS and to provide a reference for health professionals to develop intervention plans. Methods Chinese and English databases, including PubMed, Embase, Web of Science, Cochrane Library, China National Knowledge Infrastructure(CNKI), China Biology Medicine Disc(CBM), Wanfang Data Knowledge Service Platform, and VIP Chinese Journal Service Platform, were searched for qualitative research on affiliate stigma among family caregivers of AIDS patients from inception to October 2024. The quality of the included studies was evaluated using the JBI Critical Appraisal Tool for Qualitative Studies from Australia, and the results were synthesized by meta-integration. Results Ten studies were included and twenty-nine findings were extracted. Similar group findings yielded seven new categories that were integrated into three main results: sources of affiliate stigma, effects of affiliate stigma on family caregivers, and diverse coping strategies for affiliate stigma. Conclusions Caregivers had negative psychological experiences of affiliate stigma. Healthcare professionals should provide more social and psychological support to caregivers and establish multilevel joint intervention programs that satisfy caregivers' demands to enhance their quality of life.
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