癌痛患者家庭肠内营养支持治疗体验及需求的质性研究  

Experience and needs of home enteral nutrition support in patients with cancerous pain:a qualitative study

作　　者：朱靓瑾 刘婧[3] 郭红桃[4] Zhu Liangjin;Liu Jing;Guo Hongtao(Department of Pain,Inner Mongolian Medical University,Hohhot 010000,Inner Mongolia Autonomous Region,China;School of Nursing,Inner Mongolia Medical University,Hohhot 010059,Inner Mongolia Region,China;Department of Nursing Administration,Inner Mongolian Medical University,Hohhot 010000,Inner Mongolia Autonomous Region China;Centre for Health Management of the Affiliated Hospital,Inner Mongolian Medical University,Hohhot 010000,Inner Mongolia Autonomous Region,China)

机构地区：[1]内蒙古医科大学附属医院疼痛科,内蒙古呼和浩特,010000 [2]内蒙古医科大学护理学院,内蒙古呼和浩特,010059 [3]内蒙古医科大学附属医院健康管理中心,内蒙古呼和浩特,010000 [4]内蒙古医科大学附属医院护理部,内蒙古呼和浩特,010000

出　　处：《现代临床护理》2025年第3期32-38,共7页Modern Clinical Nursing

基　　金：内蒙古自治区卫生健康科技计划项目,项目编号为202201279;内蒙古医科大学面上项目,项目编号为YKD2022MS052及YKD2024MS027。

摘　　要：目的 了解癌痛患者行家庭肠内营养支持的真实体验和需求,为制订有效的临床护理干预方案提供参考依据。方法 采用目的抽样法,选取2022年1月至12月对内蒙古某三级甲等综合医院疼痛科行家庭肠内营养的17例癌痛患者作为研究对象进行半结构式访谈,采用Colaizzi 7步法进行资料分析、归纳和主题提炼。结果 提炼出3个主题,包括积极体验(疼痛缓解、营养状况提升、获得家庭归属感、自我管理信心增加)、消极体验(睡眠障碍、活动受限、担忧不良反应及并发症、带管恐惧感);需要更多营养知识和社会支持(希望得到专业指导、希望得到医疗资源及政策的支持)。结论 增强癌痛患者家庭肠内营养效果的积极体验,重视癌痛患者心理评估及干预,加强癌痛患者护理随访及多元化支持,通过有效的干预解决患者在家庭肠内营养过程中出现的问题,可保障家庭肠内营养顺利安全实施。Objective To investigate the real experience and needs of home enteral nutrition(HEN)support for patients with cancer pain so as to provide references for formulating effective clinical nursing intervention programs.Methods Purposive sampling was used to select the patients with cancer pain under HEN in the Department of Pain of our hospital between January and December 2022.Semi-structured interviews were conducted in the study.Data were analysed and summarised,then the themes were extracted using Colaizzi's 7-step method.Results Three themes were extracted,including positive experiences(pain relief,improved nutritional status,sense of family belonging and increased confidence in self-management)and negative experiences(sleep disturbance,limited activities,worry about adversary reactions and complications,and fear of intubation).Patients also expressed the need for more nutritional knowledge and social support(hope for professional guidance and supports from medical resource and policy).Conclusion Medical providers should enhance the management efficiency of the patients with cancer pain and their family members,pay attention to the psychological assessment and intervention during HEN,and strengthen the diversified supports and nursing follow-up of the patients.Effective interventions should be implemented to solve issues that arise during HEN to ensure a smooth and safe implementation.

关 键 词：癌痛 肿瘤 家庭肠内营养 质性研究 治疗体验 家庭归属感 

分 类 号：R473.73[医药卫生—护理学]