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作 者:周珊 李娜[2] 马力[2] ZHOU Shan;LI Na;MA Li(School of Practice and Continuing Education,Capital Medical University,Beijing 100069,China;不详)
机构地区:[1]首都医科大学全科医学与继续教育学院,北京100069 [2]首都医科大学附属北京天坛医院全科医疗科,北京100070
出 处:《中华全科医学》2025年第5期831-835,共5页Chinese Journal of General Practice
基 金:2022年度首都全科医学研究专项(22QK13);高层次公共卫生技术人才建设项目(学科带头人-02-09)。
摘 要:随着老龄化进程加快,慢性非传染性疾病患病率逐年增加,多病共存现象越来越普遍。多病共存患者的健康管理是全球卫生保健服务的重要挑战。相较于健康、患单一慢性病的人群,多病共存患者依赖更多的医疗资源,在影响个体生活质量的同时,给家庭及社会带来沉重的照护压力和经济负担,加重治疗负担。治疗负担是指患者因为医疗保健需承担的工作及其带来的影响。患者会经历不同程度的治疗负担,了解治疗负担,识别并确定最有可能承受高治疗负担的人群,设计满足他们需求的医疗保健服务非常重要。美国、法国、英国等西方发达国家对治疗负担已有相关评估工具并得到推广应用,准确、有效评估治疗负担的工具有利于患者知晓自身健康状况及相应的挑战,为制定个性化干预措施、评价干预效果提供依据,积极的医学干预对减轻患者治疗负担有显著的积极作用。本文就多病共存患者治疗负担相关的评估工具进行总结,介绍了治疗负担的概念,治疗负担问卷、多病共存感知量表、日常用药负担问卷、医疗保健任务困难量表、患者关于治疗和自我管理的体验量表、药物负担相关的生活质量量表、慢性病共存治疗负担问卷、老年慢病共存患者治疗负担量表等主要评估工具的内容、信效度、优缺点,以期总结现有的经验和模式,因地制宜创新适宜本土文化的多病共存患者治疗负担的评估工具,为医务人员选择相关评估工具提供参考。With the acceleration of aging,the prevalence of chronic noncommunicable diseases and multimorbidity is increasing,posing significant challenges for patients health management.Compared with healthy individuals or those with a single chronic disease,patients with multimorbidity need more medical resources,which affects their quality of life and places a heavy healthcare and economic burden on families and society.The treatment burden refers to the physical,emotional,and logistical demands patients undertake due to their healthcare needs,with varying degrees of treatment burden across individuals.It is important to identify the populations at the highest risk of significant treatment burden for designing healthcare services that meet their needs.Countries such as the United States,France,and the United Kingdom have developed assessment tools for treatment burden.Accurate and effective assessment tools are essential for helping patients understand their health status and challenges,providing a basis for personalized interventions and outcome evaluation.Active medical interventions have been significantly reduced treatment burden.It summarizes the assessment tools for treatment burden on patients with multimorbidity,detailing their contents,reliability,validity,advantages,and disadvantages.Key tools discussed include the treatment burden questionnaire,multimorbidity illness perceptions scale,living with medicines questionnaire,health care task difficulty,patient experience with treatment and self-management,medication-related burden quality of life,and the multimorbidity treatment burden questionnaire.The goal is to summarize the existing experience and models,innovate culturally appropriate assessment tools,and provide reference for healthcare professionals in selecting the relevant assessment tool.
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