我国长三角地区妇幼保健机构患者医疗信息共享意愿研究  

A Study on the Willingness to Share Patients Medical Information in Maternal and Child Healthcare Institutions in the Yangtze River Delta Region of China

作　　者：石晶金 邱骏[1] 郭燕子 袁瑞 SHI Jingjin;QIU Jun;GUO Yanzi;YUAN Rui(The International Peace Maternity and Child Health Hospital,School of Medicine,Shanghai Jiao Tong University/Shanghai Key Laboratory of Embryo Original Diseases,Shanghai 200030,China)

机构地区：[1]上海交通大学医学院附属国际和平妇幼保健院·上海市胚胎源性疾病重点实验室,上海市200030 [2]上海市宝山区友谊街道社区卫生服务中心,上海市200443

出　　处：《中国卫生信息管理杂志》2025年第2期235-244,268,共11页Chinese Journal of Health Informatics and Management

基　　金：国家自然科学基金面上项目“基于利益相关者分析和区块链技术的跨区域专科联盟数据共享机制研究”(72074146);上海申康医院发展中心市级医院诊疗技术推广及优化管理项目“互联互通背景下妇幼专科门诊患者就医体验提升策略研究”(SHDC12024618);2024年度中国福利会科研课题“高水平研究型妇幼专科医院科研创新能力提升策略研究”(YB202401)。

摘　　要：目的为增进医疗信息共享的社会认同度,优化女性患者就医服务体验,深入剖析妇幼保健机构门诊患者对于医疗数据共享的认知态度及其共享意愿的影响因素。方法采用便利抽样方法开展横断面研究,运用描述性统计分析、χ^(2)检验、有序Logistic回归进行数据分析。结果绝大多数患者认为在医疗机构间实现数据共享所带来的感知收益超过了感知风险,且相较于科研用途,患者对于医疗场景下的数据共享表现出更为显著的支持态度(χ^(2)=105.984,P<0.001)。医院层级和个人信息泄露经历成为影响其共享意愿的重要变量。结论妇幼保健机构应依据数据类型及应用场景的差异,结合患者的个性化特征,细化业务流程与管理规范,明确数据共享过程中各利益相关方的行为准则。Objective To enhance the social acceptance of medical information sharing and optimize the medical service experience for female patients,this study aims to conduct an in-depth analysis of the awareness and attitudes of outpatients in maternal and child health care institutions towards medical data sharing,as well as the factors influencing their willingness to share.Methods A cross-sectional study was conducted using a convenience sampling method,with data analyzed through descriptive statistical analysis,χ^(2) test,and ordered Logistic regression.Results The research findings indicate that the majority of patients perceive the benefits of data sharing among medical institutions to outweigh the perceived risks,and they exhibit a more pronounced supportive attitude towards data sharing in medical scenarios compared to research contexts(χ^(2)=105.984,P<0.001).Hospital hierarchy and personal experiences of information leakage emerge as significant variables influencing patients’willingness to share medical information.Conclusion Maternal and child healthcare institutions should,based on the differences in data types and application scenarios,and in combination with the personalized characteristics of patients,refine business processes and management norms,and clarify the behavioral standards of all stakeholders during the data sharing process.

关 键 词：长三角地区 妇幼保健机构 共享意愿 健康医疗数据 数据共享 

分 类 号：R195[医药卫生—卫生统计学] R319[医药卫生—卫生事业管理]