When a 17-Year-Old Girl Is Diagnosed with Myalgic Encephalomyelitis: A Case Study from the Swedish Health Care System—A Parent Perspective  

作　　者：Eva Bojner Horwitz Jonas Axelsson Olli Polo Leif Widebert Tö res Theorell Anabelle Paulino David Ullman Jonas Bergquist Eva Bojner Horwitz;Jonas Axelsson;Olli Polo;Leif Widebert;Töres Theorell;Anabelle Paulino;David Ullman;Jonas Bergquist(Department of Music, Pedagogy and Society, Royal College of Music, Stockholm, Sweden;Department of Clinical Neuroscience, Karolinska Institutet, Solna, Sweden;Center for Social Sustainability, CSS, Karolinska Institutet, Solna, Sweden;Amelie Clinic and Karolinska Institutet, Solna, Sweden;ME-Center, Bragée Clinics, Stockholm, Sweden;Hälsosjälen, Mölndal, Göteborg, Sweden;Stress Research Institute, Stockholm University, Stockholm, Sweden;Karolinska Institutet, Solna, Sweden;Sophiahemmet, Barnsjukhuset Martina, Sweden;Analytical Chemistry and Neurochemistry, Department of Chemistry—BMC, Uppsala University, Uppsala, Sweden;The ME/CFS Collaborative Research Centre at Uppsala University, Uppsala, Sweden)

机构地区：[1]Department of Music, Pedagogy and Society, Royal College of Music, Stockholm, Sweden [2]Department of Clinical Neuroscience, Karolinska Institutet, Solna, Sweden [3]Center for Social Sustainability, CSS, Karolinska Institutet, Solna, Sweden [4]Amelie Clinic and Karolinska Institutet, Solna, Sweden [5]ME-Center, Bragée Clinics, Stockholm, Sweden [6]Hä lsosjä len, Mö lndal, Gö teborg, Sweden [7]Stress Research Institute, Stockholm University, Stockholm, Sweden [8]Karolinska Institutet, Solna, Sweden [9]Sophiahemmet, Barnsjukhuset Martina, Sweden [10]Analytical Chemistry and Neurochemistry, Department of Chemistry—BMC, Uppsala University, Uppsala, Sweden [11]The ME/CFS Collaborative Research Centre at Uppsala University, Uppsala, Sweden

出　　处：《Case Reports in Clinical Medicine》2022年第8期280-296,共17页临床医学病理报告（英文）

摘　　要：This case study presents different strategies that were explored by the patient’s mother (who is a researcher in music and medicine) when her 17-year-old daughter was diagnosed with ME (Myalgic Encephalomyelitis), also known as Chronic Fatigue Syndrome (CFS). ME is not widely recognized in the Global as well as the Swedish population at large, and within healthcare, there are no standardized recommended treatments, partly due to the lack of published evidence-based studies. This case study aims to provide insights into how the Swedish healthcare system works, how different clinics and hospitals within it operate and interconnect;and how these contribute to health outcomes after 15 months of treatment.This case study presents different strategies that were explored by the patient’s mother (who is a researcher in music and medicine) when her 17-year-old daughter was diagnosed with ME (Myalgic Encephalomyelitis), also known as Chronic Fatigue Syndrome (CFS). ME is not widely recognized in the Global as well as the Swedish population at large, and within healthcare, there are no standardized recommended treatments, partly due to the lack of published evidence-based studies. This case study aims to provide insights into how the Swedish healthcare system works, how different clinics and hospitals within it operate and interconnect;and how these contribute to health outcomes after 15 months of treatment.

关 键 词：Case Study Myalgic Encephalomyelitis Parent Perspective Swedish Health Care 

分 类 号：H31[语言文字—英语]