恶性肿瘤患儿家庭管理方式及影响因素调查研究  

Study on Family Management Style and Influencing Factors of Childhood Cancer

作　　者：孙玉倩[1] 孙秉赋[2] 王凤玲[2] 温颖娜[1] 崔颖[1] 郝晶[1] 刘瑞华[1] 

机构地区：[1]河北联合大学护理与康复学院,河北省唐山市063000 [2]河北联合大学附属医院,河北省唐山市063000

出　　处：《中国全科医学》2013年第9期1016-1019,共4页Chinese General Practice

摘　　要：目的调查恶性肿瘤患儿的家庭管理方式及影响因素。方法采取整群随机抽样方法,抽取2011—2012年在北京市4家、唐山市4家三级甲等医院内就诊的白血病、脑瘤、淋巴瘤等恶性肿瘤患儿的母亲或父亲280名,采用家庭管理测量量表(FaMM)中文版进行调查,包括患儿日常生活状况、父母疾病管理能力、父母对疾病担心状况、父母疾病管理困难状况、父母疾病精力消耗状况、父母相互支持状况,评定各分量表的评分,采用Pearson相关性分析方法分析各分量表间的相关性,采用多元逐步回归分析方法分析影响恶性肿瘤患儿家庭管理方式的因素。结果恶性肿瘤患儿日常生活状况得分为(14.5±2.5)分,父母疾病管理能力得分为(38.5±7.5)分,父母对患儿疾病担心状况得分为(38.7±4.6)分,父母疾病管理困难状况得分为(50.2±10.7)分,父母疾病精力消耗状况得分为(16.1±5.2)分,父母相互支持得分为(34.2±6.4)分。Pearson相关性分析显示,患儿日常生活状况与父母疾病管理能力和父母相互支持,父母对疾病担心状况与父母疾病管理困难状况和父母疾病精力消耗状况,父母疾病管理困难状况与父母疾病精力消耗状况,父母疾病管理能力与父母相互支持,均呈正相关(P<0.05);患儿日常生活状况与父母对疾病担心状况、父母疾病管理困难状况和父母疾病精力消耗状况,父母对疾病担心状况与父母疾病管理能力和父母相互支持,父母疾病管理困难状况与父母疾病管理能力和父母相互支持,父母疾病精力消耗状况与父母疾病管理能力和父母相互支持,均呈负相关(P<0.05)。多元逐步回归分析结果显示,年住院次数>3次、父亲大专及以上文化、患儿13～16岁、家庭月收入>5 000元、患病时间>3年、与祖辈同住进入回归模型。结论年住院次数>3次、患病时间>3年、与祖辈共同居住是恶性肿瘤患儿家庭管理方式的危险性因�Objective To explore family management style and influencing factors of childhood cancer. Methods Cluster random sampling was used to select 280 parents of cancerous children with leukemia, brain tumor and lymphoma admitted to eight first- class hospitals in Beijing and Tangshan from 2011 to 2012, and they were investigated by FaMM, including the scores of daily lives of children, the disease management ability of parents, worrying condition by the parents, the management difficulties by the parents, energy consuming of the parents and the mutual support of the parents. Pearson correlation analysis was used to analyze the relationship between each subscale. Multiple stepwise regression analysis was Used to analyze the influencing factors for the family management of childhood cancer. Results The scores of daily lives of children, the disease management a- bility of parents, worrying condition by the parents, the management difficulties by the parents, energy consuming of the parents and the mutual support of the parents were （ 14. 5±2. 5 ） , （38.5±7.5） , （38.7±4. 6） , （50. 2±10.7） , （ 16. 1 ± 5.2） and （ 34. 2±6. 4） respectively. Pearson correlation analysis showed that the daily lives of children, disease management ability of parents and mutual support of the parents, the management difficulties by the parents and energy consuming of the parents and disease management ability of parents and the mutual support of the parents were all positively correlated （ P 〈 0. 05 ） . The daily lives of children, worrying condition by the parents, management difficulties by the parents and energy consuming of the parents, worrying condition by the parents, disease management ability of parents and mutual support of the parents, the management dif- ficulties by the parents, disease management ability of parents and mutual support of the parents, energy consuming of the parents, disease management ability of parents and mutual support were all negatively correlated （P 〈 0. 05） . Multiple

关 键 词：肿瘤 儿童 家庭护理 家庭管理测量量表 

分 类 号：R733.7[医药卫生—肿瘤]