1型糖尿病儿童青少年生存质量调查及分析  

Survey on quality of life in children and adolescents with type 1 diabetes

作　　者：李荣[1] 熊丰[1] 胡玉娟[1] 侯玲[2] 程昕然 罗雁红[1] 马勤香[1] 王力[1] 罗顺清[1] 朱岷[1] 

机构地区：[1]重庆医科大学附属儿童医院,重庆400014 [2]华中科技大学附属同济医院,湖北武汉430074 [3]成都市妇女儿童中心医院,四川成都610091

出　　处：《浙江大学学报（医学版）》2013年第4期388-395,共8页Journal of Zhejiang University(Medical Sciences)

基　　金：世界糖尿病基金会(WDF)中国儿童糖尿病管理项目(WDF11-617)

摘　　要：目的:通过对98例1型糖尿病儿童青少年进行生存质量现状调查,评价受1型糖尿病影响的儿童青少年群体的生存现状,发现与之有关的影响因素,并探索适合中国国情的儿童糖尿病生存质量评价方法。方法:采用引进的美国青少年儿童糖尿病生存质量量表:Diabetes Quality of Life for Youths[1]对2012年4月-12月参加重庆、武汉及成都三地糖尿病夏令营的98位患儿进行调查,应用SPSS19.0软件进行统计分析。结果:量表结果具有良好的信度及效度,Cronbach's Alpha值为0.942,效度检测结果为0.679;量表影响度、担忧度及满意度三维度与患者自身总体健康评分间在0.01水平均呈显著正相关;影响度及担忧度的评分超过该维度总分的一半,对自身的总体健康评分大于2分,说明1型糖尿病儿童青少年的生存质量下降;病程、饮食及血糖控制情况与量表三维度评分间在0.01水平均呈显著正相关,年龄、HbAlc与影响度及自身总体健康评分呈正相关,性别与满意度评分在0.05水平呈负相关。其中饮食情况对生存质量的影响最为显著。结论:1型糖尿病儿童青少年的生存质量下降,尤其是病程较久患者与步入青春期及以后的女性患者、饮食与血糖控制不佳者更明显。通过测评量表信效度及对量表三维度相关性分析,证实该量表能初步的反映中国糖尿病儿童的生存质量,为建立中国糖尿病儿童生存质量量表提供数据。Objective： To survey the quality of life in children and adolescents with type 1 diabetes. Methods： Ninety-eight children and adolescents with type 1 diabetes who participated in Diabetes Summer Camp held in Chongqing,Wuhan and Cheng during 2012 April and December were recruited in the study. The American juvenile diabetes patients quality of life scale Diabetes Quality of Life for Youths was used to assess the quality of life and SPSS19.0 was used for statistical analysis. Results： The scale had satisfactory reliability and validity with a Cronbach＇s Alpha score of 0. 942 and a validity score of 0. 679. All three dimension of scales ： scales of impact, scales of worries and scales of satisfaction were significantly correlated with self-health assessment （ P 〈 0. 01 ）. The scores of impact and worries accounted for 〉 50% of total scores as the same for the self health assessment scores. The score of disease course,diet and blood glucose control were positive correlated with each other. Age and HbAlc were positively correlated with the scale of impact, while gender has negative correlation with satisfaction scale （ P 〈 0.05 ）. The diabetes diet had significant effects on the quality of life. Conclusions ： The quality of life in children and adolescents with type 1 diabetes is decreased, especially for those with longer disease course and female adolescents. The form of Diabetes Quality of Life for Youth used in the study has good reliability and validity, which can reflect the quality of life of Chinese diabetic children and adolescents.

关 键 词：糖尿病 1型 生活质量 儿童 青少年 影响因素 中国 

分 类 号：R725.8[医药卫生—儿科]