白血病患儿父母心路历程的现象学研究  

A phenomenological research on the mental journey of parents of children with leukemia

作　　者：刘卓[1] 朱妍妍[2] 李小寒[1] 

机构地区：[1]中国医科大学护理学院,沈阳110001 [2]中国医科大学附属第一医院

出　　处：《中国实用护理杂志》2014年第9期41-45,共5页Chinese Journal of Practical Nursing

摘　　要：目的 了解白血病患儿父母的内心真实体验和需求,为选择针对性的护理措施提供理论和实践依据.方法 采用质性现象学研究方法,对10位白血病患儿的父母进行半开放式访谈,并运用NVivo10.0软件管理、发掘和查找文本数据,以Colaizzi现象学分析方法进行资料的分析.结果 提炼得出4个主题：（1）孩子患白血病对父母来说是一次重大的危机事件;（2）患儿父母的心理变化大体呈现阶段性;（3）患儿父母的压力具有多元性、压力的应对具有多样性;（4）患儿父母的需求具有多极性.结论 白血病患儿的父母需要更多的关注,护理人员应采取个性化护理措施,为患儿父母提供相应的护理照顾,使其处于最佳的健康状态,从而为患儿提供更好的社会支持.Objective To explore the psychological experience and the needs of parents who had children with leukemia in order to provide the theoretical and practice reference for clinical nursing work.Methods A qualitative phenomenological methodology was used in this study.10 parents of children with leukemia were interviewed with semi-open-ended questions.The NVivo10.0 software was used to supervise,excavate and seek data.The Colaizzi phenomenological methodology was used to analyze the data.Results Through careful analysis,four themes were identified：leukemia news was like crowning calamity; psychological changes generally varied in different stages; pressure had pluralism as well as the diversity of coping.The demand had multipolarity.Conclusions Attention should be paid closely to parents with leukemia children.The individualized measures should be taken by medical workers in order to provide them with mental nursing and holistic nursing and make them stay in a best health state,so that they can supply better social support for these children.

关 键 词：白血病 儿童 父母 心路历程 现象学研究 

分 类 号：R733.7[医药卫生—肿瘤]