成骨不全患儿母亲对治疗过程心理感受的质性研究  

Qualitative research on the psychological feeling of mothers of children with osteogenesis imperfecta during treatment

作　　者：刘旭艳[1] 任秀智[2] 陈玉霞[2] 刘西芬 房凤岭 

机构地区：[1]天津市武清区人民医院内2科,301700 [2]天津市武清区人民医院骨3科成骨不全治疗中心,301700

出　　处：《中国实用护理杂志》2015年第13期994-996,共3页Chinese Journal of Practical Nursing

摘　　要：目的 了解成骨不全患儿的母亲在陪伴患儿诊断、治疗过程中的心理感受.方法 通过半结构访谈形式访问了20名成骨不全患儿的母亲,将获得的资料通过Colaizzi现象学研究法进行分析、整理.结果 通过分析、整理和提炼主题,得出心理负担重、面临多重压力、母亲的支持力量3个主题.结论 成骨不全患儿母亲需要深切人文关怀和情感支持,护理人员应采取个性化的护理措施,以提高其母亲生活质量.Objective To understand the feeling of mothers of children with osteogenesis imperfecta during the accompany of children＇s diagnosis and treatment.Methods A total of 20 mothers of children with osteogenesis imperfecta participated the semi-structured interview.The data were analyzed by Colaizzi＇s method of phenomenology.Results Three themes were acquired including heavy psychological burden,facing multiple pressure and mother＇s support through analysis,reorganization and extraction of the subjects.Conclusions Mothers of children with osteogenesis imperfecta needed humanistic concern and emotional support.Nursers should adopted personalized care measures to improve their quality of life.

关 键 词：成骨不全 患儿母亲 治疗过程 心理感受 质性研究 

分 类 号：R473.72[医药卫生—护理学]