中文版脑性瘫痪儿童生活质量问卷的信度  

Reliability of Chinese-version of Cerebral Palsy Quality of Life Questionnaire for Children

作　　者：郭金颖 史惟[2] 周美琴 王素娟[2] 

机构地区：[1]浙江省东阳市中医院,浙江金华市322100 [2]复旦大学附属儿科医院康复中心,上海市201102 [3]上海市浦东新区特殊教育学校,上海市200135

出　　处：《中国康复理论与实践》2015年第7期799-803,共5页Chinese Journal of Rehabilitation Theory and Practice

基　　金：上海市卫计委科研项目(No.20124124)

摘　　要：目的：确定中文版脑瘫儿童生活质量问卷（CPQOL）的不同自评者间的信度。方法康复医疗机构中21例脑瘫儿童的两名家长分别进行自评，1家特殊教育学校18名脑瘫儿童及其家长分别采用CPQOL中文版进行自评。计算家长间、家长与儿童间的等级间相关系数（ICC），分析家长与儿童CPQOL各项分值间的差异。结果 CPQOL各分区家长间ICC=0.49～0.86，其中功能、获得服务分区信度极好，参与能力与躯体健康、疼痛与残障的影响分区信度中等。儿童与家长间的信度相对较低（ICC=0.29～0.73），其中功能、参与能力与躯体健康的信度良好，其余3个分区均较低，社会福祉和受容度分区的信度不理想。儿童自评分值均高于家长，其中参与能力与躯体健康分区分值有显著性差异（P〈0.05）。结论中文版CPQOL家长问卷信度尚可，尤其在功能和获得服务分区；家长和儿童自评的信度中等，社会福祉和受容度分区的信度较低。Objective To determine the reliability of Chinese-version of Cerebral Palsy Quality of Life Questionnaire for Children （CPQOL） between self-raters. Methods Family members of 21 children with cerebral palsy from rehabilitation centers or hospitals, 2 mem-bers of the same one, and 18 teenagers with cerebral palsy from a special school along with one of their parents, answered CPQOL. The in-traclass correlation coefficient （ICC） between family members, as well as teenagers and their parents were calculated, and the differences of scores of each dimension between parents and teenagers were compared. Results The reliability between family members was acceptable （ICC=0.49-0.86） in all the dimension of CPQOL, which was good in the function and acquired service dimensions, and was moderate in par-ticipation and body health dimensions. The reliability was weaker between parents and teenagers （ICC=0.29-0.73）, which was acceptable in the dimensions of function, and participation and body health;and very low in the dimension of welfare and acceptance. The teenagers often rated better than their parents did, especially in the dimension of participation and body health （P＆lt;0.05）. Conclusion The reliability of CPQOL is acceptable when rated by family members of cerebral palsy children, especially in the dimensions of function and service ac-quired. It is weaker between parents and children, especially in the dimension of welfare and acceptance.

关 键 词：脑性瘫痪 生活质量 脑瘫儿童生活质量问卷 信度 

分 类 号：R742.3[医药卫生—神经病学与精神病学]