论基因不知情权  

On the Right Not to Know

作　　者：田野[1] 刘霞[1] 

机构地区：[1]天津大学法学院,天津300072

出　　处：《上海交通大学学报（哲学社会科学版）》2017年第1期42-50,共9页Journal of Shanghai Jiao tong University(Philosophy and Social Sciences)

基　　金：国家社会科学基金项目"人体基因检测的法律规制研究"(13CFX063)

摘　　要：在基因检测的技术背景下,受测者对于检测结果是否享有不知情权,这是比较法上的新课题。基因不知情权与知情权关系密切,皆根植于个人自主,但二者并不等同。基于技术上的不成熟、最佳利益原则、个人自主及私人领域保护等政策考量,确立基因不知情权具有正当性。对基因不知情权的法律保护,隐私权模式不适合我国国情,个人信息权模式缺乏明确的法源依据,一般人格权模式在当前看来是最可行的方案。基因不知情权可能与生命权、健康权和生育权等权利发生冲突,应平衡各种利益和价值而妥善解决。In genetic testing, a very new problem occurs whether the subjects involved have the right not to know in comparative law. The right not to know is closely linked to the right to know. Though they are both rooted in individual autonomy, they are not equivalent at all. Therefore, it is reasonable to establish the right not to know, due to the immature technology, the best interest, the individual autonomy, and the protection of privacy. So far as the protection of the right not to know is concerned, the right of privacy is not in accordance with the Chinese circumstance, meanwhile, the right of personal information lacks legal basis. The pattern of general personality right is, therefore, the most feasible at present. The right not to know may conflict with the right of life, the right of health, reproductive rights and so on. Therefoere, these conflicts should be resolved properly by balancing all kinds of interests and values.

关 键 词：基因检测 不知情权 个人自主 权利冲突 保护模式 

分 类 号：D923[政治法律—民商法学] D922.16[政治法律—法学]