Wilson病患者自我效能与生存质量状况及其相关性分析  

Correlation between self-efficacy and life quality in patients with Wilson's disease

作　　者：夏超[1,2] 胡文彬[3] 金艳[3] 韩咏竹[3] 胡纪源[3] 王训[3] 李凯[3] 王共强[3] 吴君霞[3] 杨任民[3] 

机构地区：[1]安徽中医药大学,合肥230038 [2]安徽省五河县中医院,233300 [3]安徽中医药大学神经病学研究所附属医院,合肥230061

出　　处：《安徽医学》2017年第1期5-8,共4页Anhui Medical Journal

基　　金：国家自然科学基金资助项目(项目编号:81072738,81473535);安徽中医药大学临床科研项目(项目编号:2012LC-1002,2014lckf02004,2014lckf02016-02018,2014lckf02039)

摘　　要：目的探讨Wilson病(WD)患者自我效能与生存质量状况及其相关性。方法采用一般自我效能感量表(GSES)和世界卫生组织生存质量测定量表简表(WHOQOL-BREF)对2013年1月至2014年1月安徽中医药大学神经病研究所附属医院215例WD患者和相匹配的190例健康人群(对照组)进行问卷调查,了解WD患者自我效能与生存质量状况及其相关性。结果WD组患者自我效能得分低于对照组[(2.344±0.4978)分vs(2.611±0.4912)分],差异有统计学意义(t=5.407,P<0.05);WD组患者生存质量总分低于对照组[(76.46±13.20)分vs(91.26±16.95)分],差异有统计学意义(t=9.835,P<0.05),各维度得分均低于对照组(P<0.05);WD患者自我效能得分与生存质量总分及各维度得分呈正相关(P均<0.05)。结论 WD患者一般自我效能及生存质量低于健康人群,其自我效能与生存质量呈正相关,即一般自我效能感越好其生存质量越好。Objective To investigate the correlation between self-efficacy and the life quality in patients with Wilson＇s disease （WD）. Methods TheGeneral Self-Efficacy Scale （GSES） and the WHO Quality of Life Scale （WHOQOL-BREF） were used for investigation among 215 WD patients as WD group and 190 healthy people as the control group in order to study the correlation between self-efficacy and the life quality in patients with WD. Results According to GSES,the score in WD group was significantly lower than that in the control group （2.344±0.4978 vs. 2.611±0.4912,t=5.407, P〈0.05）. According to WHOQOL-BREF, the total score in WD group was significantly lower than that in the control group（76.46±13.20 vs. 91.26±16.95,t=9.835, P〈0.05）,so it was with all the items of the life quality scale （P〈0.05）. The score on the self-efficacy had the positive correlation with that of the total score on the life quality together with items （P〈0.05）. Conclusion The self-efficacy and life qualityin patients with Wilson＇s disease are significantly lower than those for healthy people. Their self-efficacy is positively related with the quality of life, which means the better self-efficacy they have, the better their quality of life is.

关 键 词：WILSON病 肝豆状核变性 自我效能 生存质量 

分 类 号：R742.4[医药卫生—神经病学与精神病学]