唐氏综合征患儿主要照顾者心理体验的质性研究  

Qualitative study on psychological experience of primary caregivers of Down syndrome

作　　者：张丽娟[1] 

机构地区：[1]北华大学护理学院儿科护理学教研室,吉林132013

出　　处：《中国实用护理杂志》2017年第10期755-757,共3页Chinese Journal of Practical Nursing

摘　　要：目的 采用质性研究的方法对唐氏综合征患儿照顾者的心理体验进行研究,以便给予必要的支持.方法 采用目的抽样法选取8名唐氏综合征患儿的主要照顾者为研究对象,采用非结构式访谈法收集资料并仔细阅读、分析、编码和汇集访谈记录,升华出反映研究对象心理体验的主题概念.结果 共升华出4个主题概念：对孩子患病感到痛苦和无助;承受压力且身心俱疲;感到希望渺茫;渴望得到支持和理解.结论 唐氏综合征主要照顾者的心理压力很大,我们应帮助他们减轻压力,指导他们正确训练患儿,使他们增强自信心,从而更好地照顾患儿.Objective Qualitative research was used to study the psychological experience of caregivers of children with Down syndrome so as to give them necessary support. Methods Objective sampling method was used to select 8 children with Down syndrome caregivers as the research object, using unstructured interviews to collect data and carefully read, analyze, encode and collect the records of interviews, and then sublimate the theme concept reflecting the psychological experience of the research object. Results A total of 4 themes had been raised：the pain and helplessness of the child, the stress and exhaustion of the body, the feeling of hopeless, the desire for support and understanding. Conclusions The psychological stress of the main caregivers of Down syndrome is great, we should help them relieve the pressure, instruct them to train the children correctly, make them strengthen their self-confidence and take better care of their children.

关 键 词：唐氏综合征 质性研究 心理体验 照顾者 

分 类 号：R473.72[医药卫生—护理学]