孤独症谱系障碍儿童父母照顾负担及生活质量调查  

Childcare burden and quality of life in parents of children diagnosed with autism spectrum disorders

作　　者：肖璐 欧建君[1] 陈琛[2] 寻广磊[3] 沈屹东[1] 赵靖平[1] XIAO Lu OU Jianjun CHEN Chen et al(Mental Health Institute of the Second Xiangya Hospital, Changsha 410011, China.)

机构地区：[1]中南大学湘雅二医院精神卫生研究所,长沙410011 [2]司法部司法鉴定科学技术研究所 [3]山东省精神卫生中心

出　　处：《国际精神病学杂志》2017年第5期814-818,共5页Journal Of International Psychiatry

基　　金：国家重点基础研究发展计划项目(编号:2012CB517901);青年科学基金(编号:81601197)

摘　　要：目的调查评估孤独症谱系障碍(ASD)儿童父母的照顾负担及生活质量。方法使用Zarit护理负担量表(ZBI)评估父母照顾负担。使用简式健康状况问卷第二版(SF-36v2)评估父母生活质量。使用社交反应量表(SRS)评估儿童社交障碍。使用Sobel检验研究儿童社交障碍、父母照顾负担及生活质量三者的关系。结果与正常发育(TD)儿童家庭相比,ASD家庭母亲的照顾负担更重(P<0.001);ASD儿童父母的生活质量低于TD儿童父母(P<0.05);ASD儿童社交障碍对其母亲生活质量的影响是通过增加照顾负担来介导调节的(P<0.001)。结论儿童孤独症谱系障碍给母亲带来了沉重的照顾负担,并严重影响了父母的生活质量。Objective To evaluate the childcare burden and quality of life in parents of children with autism spectrum disorders（ASD）. Methods Zarit Caregiver Burden（ZBI）and Short Form 36 Health Survey Questionnaire Version 2.0（SF-36 v2）were used to evaluate the parental childcare burden and quality of life respectively. The Social Responsiveness Scale（SRS）was used to evaluate children＇s social impairment. Sobel text was used to examine the relations between children＇s social impairment,parental quality of life and childcare burden. Results The mothers in the ASD group experienced greater childcare burden than the mothers in the TD group（P〈0.001）. The parents in the ASD group had a lower quality of life than the parents in the TD group（all P〈0.05）. Childcare burden mediated the influence of children＇s social impairment on maternal quality of life（P〈0.001）. Conclusion ASD is associated with heavy maternal childcare burden and poor parental quality of life.

关 键 词：孤独症谱系障碍 照顾负担 生活质量 社交障碍 Sobel检验 

分 类 号：R749.94[医药卫生—神经病学与精神病学]