论人类遗传信息的所有权  

The Ownership of Human Genetic Information

作　　者：肇旭[1] 

机构地区：[1]华东政法大学,上海201620

出　　处：《中国科技论坛》2018年第3期117-123,共7页Forum on Science and Technology in China

基　　金：国家社会科学基金项目"遗传资源流失防控法律对策研究"(15BFX156);教育部人文社科项目"遗传资源获取与惠益分享专利制度研究"(13YJC820112)

摘　　要：人类遗传信息是极具价值的个人本质信息。价值引发所有权争夺,本文以美国为蓝本,系统分析了遗传信息归属于个人、获取者、家族成员或全人类的合理性与争议。在利益平衡语境下,本文认为:应借鉴美国做法,赋予获取者针对人类遗传信息的所有权,以医生告知遗传风险义务平衡个人利益和家族成员利益,同时以知情同意和信息保密加强对个人利益的维护。Human Genetic information is the personal essential information with great value, which triggers ownership disputes. In this paper, with the reference of the United States, the rationality and controversy against ownership of genetic information by the individu- al, the acquirer, family members or the whole mankind were analyzed. After balancing the interests, it is suggested that the acquirer should own property interests of human genetic information, the doctor should be conferred with liability of warning genetic risks to bal- ance the interests of the individual and family members, in the meanwhile, the protection of personal interests should be enhanced by informed consent and information security.

关 键 词：遗传信息 所有权 美国 利益平衡 

分 类 号：D913[政治法律—民商法学]