多发性骨髓瘤患者亲属照顾者照顾负担及其影响因素分析  

Analysis of caregiver burden of relative caregivers of multiple myeloma patients and its influencing factors

作　　者：郑关琼 曹政芳 李莹莹[1] 李晓茜[1] 袁晓莉[1] 成巧梅 Zheng MQ;Cao ZF;Li YY;Li XQ;Yaan XL;Cheng QM(Hematology Department, He＇nan Provincial People＇s Hospital, Zhengzhou 450003, Chin;Internet Intelligence Classification Clinic, He＇nan Provincial People＇s Hospital, Zhengzhou 450000, Chin)

机构地区：[1]河南省人民医院血液内科,郑州450003 [2]互联智慧分级诊疗中心

出　　处：《中华现代护理杂志》2018年第7期750-755,共6页Chinese Journal of Modern Nursing

基　　金：2016年度河南省医学科技攻关计划项目（201602181）

摘　　要：目的 调查多发性骨髓瘤患者亲属照顾者的照顾负担现状,分析其影响因素.方法 采用横断面调查研究方法,便利选取125例2015年12月—2017年3月在河南省人民医院血液内科治疗的多发性骨髓瘤患者及其亲属照顾者.应用一般情况调查表、照顾负担问卷（ZBI）、Barthel指数评定量表（BI）、社会支持评定量表（SSRS）及心理弹性量表（CD-RISC）进行调查,数据采用PASW18.0软件进行统计分析.结果 多发性骨髓瘤患者亲属照顾者的ZBI得分为（57.01±15.36）分,86.4%的照顾者得分在中度及以上水平.患者合并症数量、照顾者文化程度、家庭平均月收入、照顾时间不同的照顾者其ZBI得分差异有统计学意义（t/F/H值分别为3.924、9.656、8.062、20.608;P〈0.05）.多发性骨髓瘤患者的BI得分平均为（53.56±8.30）分,为中等功能障碍,与ZBI总分及各维度得分呈负相关（P〈0.01）;亲属照顾者的SSRS得分平均为（48.18±8.53）分,为高水平的社会支持,CD-RISC得分平均为（64.50±9.41）分,两者均与ZBI总分及各维度得分呈负相关（P〈0.05）.多元线性回归分析结果 显示,患者方面的合并症数量和生活自理能力,亲属照顾者方面的家庭平均月收入、照顾时间、社会支持及心理弹性均进入回归方程,共可解释方差变异量的40.1%.结论 多发性骨髓瘤患者亲属照顾者的照顾负担相对严重,患者的合并症情况及生活自理能力,以及亲属照顾者的家庭平均月收入、照顾时间、社会支持及心理弹性为其照顾负担的影响因素.Objective To investigate the current situation of caregiver burden of relative caregivers of multiple myeloma patients, and to analyze its influencing factors. Methods Cross-section investigation method was used in the study. A total of 125 multiple myeloma patients and their relative caregivers, who accepted treatment in the hematology department of He＇nan Provincial People＇s Hospital from December 2015 to March 2017 were selected by convenience sampling method. The general situation investigation questionnaire, Zarit Caregiver Burden Inventory （ZBI）, Barthel Index （BI）, Social Support Rating Scale （SSRS） and Connor-Davidson Resilience Scale （CD-RISC） were adopted in the investigation. PASW 18.0 software was adopted for statistical analysis of the data. Results The ZBI score of the relative caregivers of multiple myeloma patients was （57.01±15.36）, and 86.4% of the caregivers＇ scored at a moderate level and over. The differences of ZBI scores of the caregivers with different educational background, family average monthly income, caring time and the different numbers of complications in patients were statistically significant （t/F/H=3.924,9.656,8.062,20.608;P〈 0.05）. The average score of BI in multiple myeloma patients was （53.56±8.30）, with moderate dysfunction, which was negatively correlated with the total score of ZBI and the scores of its all dimensions （P〈 0.01）. The average score of SSRS in the caregivers was （48.18± 8.53）, with a high level of social support, and the average score of CD-RISC was （64.50±9.41）, the two of which were both negatively correlated with the total score of ZBI and the scores of its all dimensions （P〈0.05）. As indicated by the results of multiple linear regression analysis, the complication number and self-care ability of the patients as well as the average monthly family income, caregiving time, social support and mental elasticity of the relative caregivers could be included in the regression equation, which explained 40

关 键 词：横断面研究 多发性骨髓瘤 照顾者 照顾负担 影响因素 

分 类 号：R733.3[医药卫生—肿瘤]