炎症性肠病患者症状负担调查分析  

Investigation and analysis on symptom burden in inflammatory bowel disease patients

作　　者：赵媛媛 顾洁[2] 张媛媛[1] 吴振云[1] 杨小辉[3] 钮美娥[1] Zhao Yuanyuan;Gu Jie;Zhang Yuanyuan;Wu Zhenyun;Yang Xiaohui;Niu Mei＇e(Nursing Department, the First Affiliated Hospital of Soochow University, Suzhou 215006, China;Department of Gastroenterology, the First Affiliated Hospital of Soochow University, Suzhou 215006, China;Intensive Care Unit, the First Affiliated Hospital of Soochow University, Suzhou 215006, China)

机构地区：[1]苏州大学附属第一医院护理部,苏州215006 [2]苏州大学附属第一医院消化内科,苏州215006 [3]苏州大学附属第一医院ICU,苏州215006

出　　处：《中华现代护理杂志》2018年第16期1895-1899,共5页Chinese Journal of Modern Nursing

基　　金：苏州市科技计划项目（SYS201615）

摘　　要：目的调查炎症性肠病（XBD）患者症状负担水平，比较不同一般资料、疾病类型、疾病状态的IBD患者症状负担情况。方法采用便利抽样法，选择2017年4—5月苏州大学附属第一医院炎症性肠病信息支持平台的IBD患者为研究对象。通过微信发放自制的一般资料调查表和改编的Memorial症状评估量表（MSAS）对患者进行问卷调查。采用秩和检验分析不同特征患者疾病负担情况。结果共回收有效问卷265份。265例患者自我报告的1周内症状有32．0（26．0，37．0）种，发生率最高的症状为精力不足，其中在心理症状中，发生率最高的是焦虑。总症状负担得分为60．0（24．7，102．4）分。溃疡性结肠炎患者以精力不足和肠道问题常见，克罗恩病患者以疲乏、营养不良和心理问题常见。不同疾病活动情况、患病时间、是否因疾病旷课或请假、是否因疾病休学或辞职以及是否与家人同住的IBD患者总症状负担得分差异存在统计学意义（P〈0．05）。结论IBD给患者带来严重身体和心理上的症状负担，护理人员应加强对各症状全面的评估和管理，特别是精力不足和心理症状，针对疾病不同类型的症状特点，采取有效的护理措施，帮助IBD患者减轻症状负担，提高生活质量。Objective To explore the symptom burden of inflammatory bowel disease （IBD） patients and to compare the differences of symptom burden of IBD patients among different general information, disease types, disease state. Methods From April to May 2017, IBD patients in IBD information supporting platform patients of the First Affiliated Hospital of Soochow University were selected as subjects by convenience sampling. The questionnaire survey was carried out with the self-designed general information questionnaire and the adapted Memorial symptom assessment scale （MSAS） sent out by WeChat. The rank test was used to analyze the status of disease burden among patients with different characteristics. Results A total of 265 valid questionnaires were collected totally. There were 32.0 （26.0, 37.0） symptoms which showed one week self- reported by 264 patients. Anenergia was with one of the highest rates of symptom. Anxiety was with one of the highest rates of phychological symptom. The score of symptom burden was 60.0 （24.7, 102.4）. Anenergia and intestinal problems were common in patients with ulcerative colitis. Fatigue, malnutrition and psychological problems were common in patients with Crohn＇s disease. There were significant differences in scores of total symptom burden among IBD patients with a different situation in disease activities, duration courses, absenteeism or asking for leave due to disease, suspension of schooling or resignation because of disease, whether living with family or not （P 〈 0.05）. Conclusions IBD brings serious physical and mental symptom burden to patients. Nurses should strengthen comprehensive assessment and management of symptoms especially in anenergia and phychological symptoms. And then, nurses should take effective nursing intervention according to symptom with different characteristics so as to ease the symptom burden for patients and improve life quality.

关 键 词：问卷调查 炎症性肠病 症状负担 

分 类 号：R574.62[医药卫生—消化系统]