癌末患者家庭主要照顾者生活质量探索--基于住院与居家宁养的对照研究  

Quality of Life in Primary Family Caregivers of Patients with Advanced Cancer:A Comparative Study Based on Hospital and Home-based Hospice

作　　者：林家祺 何卓心 范冠华[1] LIN Jia-qi;HE Zhuo-xin;FAN Guan-hua(Medical College,Shantou University,Shantou 515041,China)

机构地区：[1]汕头大学医学院,广东汕头515041

出　　处：《医学与哲学》2020年第13期20-25,55,共7页Medicine and Philosophy

基　　金：2015年全国教育科学“十二五”规划教育部重点课题(DIA150305)。

摘　　要：采用横断对照的研究方法,在广东省医院和宁养院发放纸质和电子问卷进行调查。对比住院与居家宁养癌末患者家庭主要照顾者生活质量差异及影响因素,结果显示住院癌末患者主要照顾者生活质量高于居家宁养癌末患者主要照顾者(P<0.01)。与患者关系、家庭经济状况显著影响住院癌末患者主要照顾者生活质量,家庭经济状况、有否照顾经验及每日照顾时数显著影响居家宁养癌末患者主要照顾者生活质量(P<0.05)。居家宁养癌末患者主要照顾者生活质量亟待提高,居家临终关怀服务模式应加大对主要照顾者的关注。A research was designed to compare the difference and influencing factors of quality of life(QoL)in primary family caregivers(PFCs)of hospitalized and home-based hospice patients with advance cancer with cross-sectional comparative method,and by paper or online questionnaires in hospitals and hospice centers in Guangdong Province,China.The results showed that the QoL in PFCs of patients with advanced cancer in hospital was generally better than that in home-based hospice(P<0.01).Kinship and family economic situation were proved to significantly affect the QoL in the PFCs of hospitalized patients with advanced cancer,while family economic situation,daily care duration and caring experience showed significance in the QoL of PFCs in home-based hospice(P<0.05).In conclusion,the QoL in home-based hospice PFCs should be improved,the model of home-based hospice should pay more attention to PFCs.

关 键 词：晚期癌症 临终关怀 家庭主要照顾者 生活质量 医学生宁养服务志愿者 

分 类 号：R-05[医药卫生]